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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (807)
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@avcowie

Hi Jess51,
I’m from Victoria BC too!
I had OHS Feb 1 for my HCM but it was my Mitral valve causing most issues so they replaced it and left my heart wall alone. I tried Camzyos prior to that and it made me feel worse. Now I’m hoping it will work better for me. My cardiologist is setting up my first new delivery. So I hope I get it soon.
How are you doing these days? Have you increased your dose?
Thanks in advance ❤️

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Replies to "Hi Jess51, I’m from Victoria BC too! I had OHS Feb 1 for my HCM but..."
jess51 | @jess51 | Sep 17 1:15pm

Hello
Nice to hear from someone in Victoria!
I have remained on the 5mg of Camzyos and it continues to work very well for me. When I forget to take it, I am made aware of how well it IS working.
I wish you the best of outcomes - My cardiologist is part of the Pulse Cardiology group and I have been very happy with the clinic.

More than happy to communicate privately as well since we are both from the same vacinity.

wishing you the best outcomes!
Jessica

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