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Parkinson's and Speech/Swallowing Problems

Parkinson's Disease | Last Active: Jun 20, 2018 | Replies (21)

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@hopeful33250

I appreciate your sharing more about yourself, @anna1060

I did not know that a DaT scan was being used to diagnosis Parkinson's. Could you tell us a little more about it?

If you are comfortable doing so, please share a bit more as to how long it took for you to get a PD diagnosis (for some of us it is a long time) and what type of symptoms you were having when you were diagnosed. How is the Azilect working for you? Is it dealing with your symptoms?

We look forward to hearing more of your story - we all learn from each other at Mayo Connect.

Teresa

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Replies to "I appreciate your sharing more about yourself, @anna1060 I did not know that a DaT scan..."

Sorry to break in here but I thought the DaT scan was a standard procedure. When I was first seen at Neuro I was told they would like one but I didn’t care much for that long in an MRI and they told me it didn’t matter a lot because I had so many (mild)

symptoms that they would treat me for PD regardless of results anyway.

Could you explain the “tightness” in your thighs? I have developed what almost feels like a constant cramp in one leg in front and back just above the ankle. I see the RN Wednesday and wonder if it is a new wrinkle in PD. 

Steve  

@ggopher Hi Steve:

Always feel free to "break-in." The tightness in my right thigh is like a cramp or feeling of tightness. According to the physical therapist, it is a Parkinson's problem, sometimes referred to as rigidity. I have a great stretching exercise which really relieves the pain.

Here is an article about leg pain and PD, https://defeatparkinsons.com/2015/08/24/how-to-deal-with-the-6-common-causes-of-leg-pain-in-pd-by-dr-de-leon/

Teresa

Yep, sounds like me. 

Thanks for the article.

Steve  

Thanks. Good article. 

Do you have a link to the stretching exercise?

@ggopher Hi Steve

The stretching exercise was something I learned in PT. It involves sitting on a chair - towards the front of the chair - and stretching one leg out straight in front of you. Then bending at the waist and stretching down as far as you can on that leg (try to touch your ankle, foot or floor - whatever you can do comfortably without straining your back).The important thing is to hold that stretch for 30 SECONDS (the physical therapist said that is how long it takes to release the muscle). I'll look to see if I can find a picture of it on the internet. It really helps me when the cramping and tightness begin to act up.

Teresa

Good stretch and a lot easier on the back than the standing version.  Thanks.

Steve