Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained it well, (I diagnosed that also). I began itching, white paper like skin, told my primary I thought it was lichen sclerosis, she gave me provide me cream for yeast infection. Kept telling her it was not that. I went undiagnosed for about a year. I did a little search for lichen sclerosis but not much. I came across this and so many others but did read. Was angry that I had this after taking such good care of myself. Then I realized that had nothing to do with being "blessed" with this. Finally got an approval consult for Gyno-Lichen Specialist. Got 2 horrible injections and biopsy. Left lesions and burnt area. Was given Clobetasol, stopped itching first day, then started again one week later. Clobetasol caused itching, thin skin, tears. Stopped using it. I already know I will not take another injection in that special place ( just saying that). Numbing it first did not help. Wanted to scream, and I did!!. Sorry, : ) Too graphic?? Happy I found this site and will purchase the creams. Thank you so very much for all who posted. I have learned a lot! WE will all get better and we do need each other to survive and thrive. I welcome any and all suggestions and info. Ciao
I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained it well, (I diagnosed that also). I began itching, white paper like skin, told my primary I thought it was lichen sclerosis, she gave me provide me cream for yeast infection. Kept telling her it was not that. I went undiagnosed for about a year. I did a little search for lichen sclerosis but not much. I came across this and so many others but did read. Was angry that I had this after taking such good care of myself. Then I realized that had nothing to do with being "blessed" with this. Finally got an approval consult for Gyno-Lichen Specialist. Got 2 horrible injections and biopsy. Left lesions and burnt area. Was given Clobetasol, stopped itching first day, then started again one week later. Clobetasol caused itching, thin skin, tears. Stopped using it. I already know I will not take another injection in that special place ( just saying that). Numbing it first did not help. Wanted to scream, and I did!!. Sorry, : ) Too graphic?? Happy I found this site and will purchase the creams. Thank you so very much for all who posted. I have learned a lot! WE will all get better and we do need each other to survive and thrive. I welcome any and all suggestions and info. Ciao
I know its very difficult at times to cope with, however I am optimistic that we can find a 'natural' cure. I tried the Neem Oil & Green tea extract and I had the most blissful sleep I have had in a good few years and felt very relaxed the next day, albeit, a little hot in the cheeks (face) as one thing I did notice was my heart rate went up and felt I was producing more hormones than usual, and the LS was calm & peaceful for one day. The following day it flared up, and back to square one. The autoimmune disease is very clever, it always finds a way around anything you try new and that's why the 'steriod' cream works as it 'tricks' the autoimmune system. I have tried the Perrins complete creams and yes they work for a while and then it flares up again. I am going to ask 'Neem Oil' producers who are based in Europe would they be willing to do a Pilot trial as this oil is good, and it could be just what you combine it with, so shall keep you all posted.
Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained it well, (I diagnosed that also). I began itching, white paper like skin, told my primary I thought it was lichen sclerosis, she gave me provide me cream for yeast infection. Kept telling her it was not that. I went undiagnosed for about a year. I did a little search for lichen sclerosis but not much. I came across this and so many others but did read. Was angry that I had this after taking such good care of myself. Then I realized that had nothing to do with being "blessed" with this. Finally got an approval consult for Gyno-Lichen Specialist. Got 2 horrible injections and biopsy. Left lesions and burnt area. Was given Clobetasol, stopped itching first day, then started again one week later. Clobetasol caused itching, thin skin, tears. Stopped using it. I already know I will not take another injection in that special place ( just saying that). Numbing it first did not help. Wanted to scream, and I did!!. Sorry, : ) Too graphic?? Happy I found this site and will purchase the creams. Thank you so very much for all who posted. I have learned a lot! WE will all get better and we do need each other to survive and thrive. I welcome any and all suggestions and info. Ciao
@mican the injection and biopsy may have been what affected your skin even before you applied Clobetasol, which is why the Clobetasol caused the itching, thin skin and tears. Clobetasol works for me and I use it whenever I have a flare up. Unfortunately Lichen Sclerosis cannot be cured - it can only be controlled with proper treatment, just like all autoimmune illnesses.
Hi , your post is awhile back, but I have just been researching this recently. This is what I have found helps so much.
Through trial and error as I found steroids too strong for me and made me very raw , I’ve reduced the frequency of the steroid by 75% and added the following, The results have been amazing for me in just after a few days:
It’s an all natural product:
The Company is called : Olive Branch Tasmania .
I had the product in the drawer for ages for a different reason and just thought I would try it . After Contacting the company and under health rules they were unable to give me any advice, i decided to take control of my own situation and try their product:
Calendula Soothe Balm
It has an amazing effect on soothing the area and making it healthy again.
It is full of lots of natural oils olive sweet almond hemp oil raw beeswax, JOJOBA, kunzea oil, melaleuca, bergamont, rosemary etc .
I thought I would add this and hope it is available to others with great results.
No signs of LS now and I will continue with this regime which works great for me and post again if things change .
I know its very difficult at times to cope with, however I am optimistic that we can find a 'natural' cure. I tried the Neem Oil & Green tea extract and I had the most blissful sleep I have had in a good few years and felt very relaxed the next day, albeit, a little hot in the cheeks (face) as one thing I did notice was my heart rate went up and felt I was producing more hormones than usual, and the LS was calm & peaceful for one day. The following day it flared up, and back to square one. The autoimmune disease is very clever, it always finds a way around anything you try new and that's why the 'steriod' cream works as it 'tricks' the autoimmune system. I have tried the Perrins complete creams and yes they work for a while and then it flares up again. I am going to ask 'Neem Oil' producers who are based in Europe would they be willing to do a Pilot trial as this oil is good, and it could be just what you combine it with, so shall keep you all posted.
Absolutely love the idea of natural products having benefits .
There are also other schools of thought from some specialist doctors not convinced LS is an autoimmune disease but drom other interactive causes like gut health as an example.
All research is very interesting indeed . .
Hi , your post is awhile back, but I have just been researching this recently. This is what I have found helps so much.
Through trial and error as I found steroids too strong for me and made me very raw , I’ve reduced the frequency of the steroid by 75% and added the following, The results have been amazing for me in just after a few days:
It’s an all natural product:
The Company is called : Olive Branch Tasmania .
I had the product in the drawer for ages for a different reason and just thought I would try it . After Contacting the company and under health rules they were unable to give me any advice, i decided to take control of my own situation and try their product:
Calendula Soothe Balm
It has an amazing effect on soothing the area and making it healthy again.
It is full of lots of natural oils olive sweet almond hemp oil raw beeswax, JOJOBA, kunzea oil, melaleuca, bergamont, rosemary etc .
I thought I would add this and hope it is available to others with great results.
No signs of LS now and I will continue with this regime which works great for me and post again if things change .
Hi , i did the same and then contacted Olive Branch Tasmania .
I have ordered some more under their new branding of same product which is now called
“ Kunzea soothe balm”
As the kunzea oil is now considered the most beneficial of all the ingredients .
I have used Kunzea previously for arthritis. It is a very beneficial oil .
All the best .
Connect
Connect
Like
Helpful
Hug
Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained it well, (I diagnosed that also). I began itching, white paper like skin, told my primary I thought it was lichen sclerosis, she gave me provide me cream for yeast infection. Kept telling her it was not that. I went undiagnosed for about a year. I did a little search for lichen sclerosis but not much. I came across this and so many others but did read. Was angry that I had this after taking such good care of myself. Then I realized that had nothing to do with being "blessed" with this. Finally got an approval consult for Gyno-Lichen Specialist. Got 2 horrible injections and biopsy. Left lesions and burnt area. Was given Clobetasol, stopped itching first day, then started again one week later. Clobetasol caused itching, thin skin, tears. Stopped using it. I already know I will not take another injection in that special place ( just saying that). Numbing it first did not help. Wanted to scream, and I did!!. Sorry, : ) Too graphic?? Happy I found this site and will purchase the creams. Thank you so very much for all who posted. I have learned a lot! WE will all get better and we do need each other to survive and thrive. I welcome any and all suggestions and info. Ciao
-
Like -
Helpful -
Hug
7 Reactions@suzbee227 Clobetasol cause itching and thinning of my skin. Did not help me.
-
Like -
Helpful -
Hug
2 ReactionsWas told this works. Haven't tried it yet.
ttps://www.perrinnaturals.com/natural-treatment-lichen-sclerosus?msclkid=d90426915a741c7f7d474077753b5b8a
-
Like -
Helpful -
Hug
1 Reactionperrinnaturals did not help me but did a nice job staining my undies!
hope if works for some of you!
-
Like -
Helpful -
Hug
2 ReactionsHi,
I know its very difficult at times to cope with, however I am optimistic that we can find a 'natural' cure. I tried the Neem Oil & Green tea extract and I had the most blissful sleep I have had in a good few years and felt very relaxed the next day, albeit, a little hot in the cheeks (face) as one thing I did notice was my heart rate went up and felt I was producing more hormones than usual, and the LS was calm & peaceful for one day. The following day it flared up, and back to square one. The autoimmune disease is very clever, it always finds a way around anything you try new and that's why the 'steriod' cream works as it 'tricks' the autoimmune system. I have tried the Perrins complete creams and yes they work for a while and then it flares up again. I am going to ask 'Neem Oil' producers who are based in Europe would they be willing to do a Pilot trial as this oil is good, and it could be just what you combine it with, so shall keep you all posted.
-
Like -
Helpful -
Hug
3 Reactions@mican the injection and biopsy may have been what affected your skin even before you applied Clobetasol, which is why the Clobetasol caused the itching, thin skin and tears. Clobetasol works for me and I use it whenever I have a flare up. Unfortunately Lichen Sclerosis cannot be cured - it can only be controlled with proper treatment, just like all autoimmune illnesses.
-
Like -
Helpful -
Hug
2 ReactionsHi , your post is awhile back, but I have just been researching this recently. This is what I have found helps so much.
Through trial and error as I found steroids too strong for me and made me very raw , I’ve reduced the frequency of the steroid by 75% and added the following, The results have been amazing for me in just after a few days:
It’s an all natural product:
The Company is called : Olive Branch Tasmania .
I had the product in the drawer for ages for a different reason and just thought I would try it . After Contacting the company and under health rules they were unable to give me any advice, i decided to take control of my own situation and try their product:
Calendula Soothe Balm
It has an amazing effect on soothing the area and making it healthy again.
It is full of lots of natural oils olive sweet almond hemp oil raw beeswax, JOJOBA, kunzea oil, melaleuca, bergamont, rosemary etc .
I thought I would add this and hope it is available to others with great results.
No signs of LS now and I will continue with this regime which works great for me and post again if things change .
-
Like -
Helpful -
Hug
6 ReactionsAbsolutely love the idea of natural products having benefits .
There are also other schools of thought from some specialist doctors not convinced LS is an autoimmune disease but drom other interactive causes like gut health as an example.
All research is very interesting indeed . .
-
Like -
Helpful -
Hug
5 ReactionsI went on line to Olive Branch Tasmania and I could NOT fine Calendula Soothe Balm do you know if you can still buy it?
-
Like -
Helpful -
Hug
3 ReactionsHi , i did the same and then contacted Olive Branch Tasmania .
I have ordered some more under their new branding of same product which is now called
“ Kunzea soothe balm”
As the kunzea oil is now considered the most beneficial of all the ingredients .
I have used Kunzea previously for arthritis. It is a very beneficial oil .
All the best .
-
Like -
Helpful -
Hug
2 Reactions