1. < Hypertrophic Cardiomyopathy (HCM)

Blood glucose

Posted by abqpatriotsfan @abqpatriotsfan, Sep 14 8:37pm

I have been on Camzyos for 6 months and during that time my blood glucose has been higher than before. Anyone else experience this?

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Mentor
Debra, Volunteer Mentor | @karukgirl | Sep 15 9:46am

Hello there @abqpatriotsfan, and welcome to Mayo Clinic Connect. I'm glad you found this online support community. Have you had a chance to read any of the many posts from the Camzyos group? Here is a link for that:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Camzyos is relatively new, and there may be side effects the drug manufacturer has not noted before. While we wait for some of the Camzyos folks to respond, have you had a chance to ask your cardiologist or pharmacist if increased glucose is a side effect?

REPLY
abqpatriotsfan | @abqpatriotsfan | Sep 15 1:19pm

I have asked my Cardiologist and pharmacy specialist and neither has heard of this I also reported it to the Camzyos nurse manager.

REPLY
mpjg | @mpjg | Oct 5 10:06am

I just started Camzyos 8/2/24 (5 mg) which was lowered to (2.5 mg) on 8/31/24 and had labwork 10/4/24. I also take 5 mg atorvastatin. My blood work 6 mos ago was beautiful. Although I have been maintaining a low carbohydrate and low sugar diet, my blood glucose, A1c and cholesterol/triglyceride readings have all increased somewhat. I am puzzled and wondered if the Camzyos could be having an effect.

REPLY
2 replies
Mentor
Debra, Volunteer Mentor | @karukgirl | Oct 5 10:59am
In reply to @mpjg "I just started Camzyos 8/2/24 (5 mg) which was lowered to (2.5 mg) on 8/31/24 and..." + (show)
@mpjg

I just started Camzyos 8/2/24 (5 mg) which was lowered to (2.5 mg) on 8/31/24 and had labwork 10/4/24. I also take 5 mg atorvastatin. My blood work 6 mos ago was beautiful. Although I have been maintaining a low carbohydrate and low sugar diet, my blood glucose, A1c and cholesterol/triglyceride readings have all increased somewhat. I am puzzled and wondered if the Camzyos could be having an effect.

Jump to this post

Hello @mpjg, and welcome to Mayo Connect, I am glad you found this online support community!
@abqpatriotsfan mentioned the same situation and did some research without confirming Camzyos caused increased blood glucose.
I am not on Camzyos, I had a septal myectomy for my HOCM, but there are lots of people in the Camzyos support group, so hopefully some of them can jump in here and share if they have experienced an increase in glucose while taking Camzyos.
Has your doctor gone over your lab results with you? Have you had a chance to ask your doctor or the specialty pharmacist if Camzyos may be responsible for this increase?
If it were me, I would definitely give their office a call on Monday!

REPLY
1 reply
mpjg | @mpjg | Oct 5 1:18pm
In reply to @karukgirl "Hello @mpjg, and welcome to Mayo Connect, I am glad you found this online support community!..." + (show)
@karukgirl

Hello @mpjg, and welcome to Mayo Connect, I am glad you found this online support community!
@abqpatriotsfan mentioned the same situation and did some research without confirming Camzyos caused increased blood glucose.
I am not on Camzyos, I had a septal myectomy for my HOCM, but there are lots of people in the Camzyos support group, so hopefully some of them can jump in here and share if they have experienced an increase in glucose while taking Camzyos.
Has your doctor gone over your lab results with you? Have you had a chance to ask your doctor or the specialty pharmacist if Camzyos may be responsible for this increase?
If it were me, I would definitely give their office a call on Monday!

Jump to this post

Yes, thank you, I shall be in touch with them. Also managing hypothyroidism and pre-diabetes and want to preempt my endocrinologist's concern.

REPLY
jenywilliams | @jenywilliams | Oct 6 8:20am
In reply to @mpjg "I just started Camzyos 8/2/24 (5 mg) which was lowered to (2.5 mg) on 8/31/24 and..." + (show)
@mpjg

I just started Camzyos 8/2/24 (5 mg) which was lowered to (2.5 mg) on 8/31/24 and had labwork 10/4/24. I also take 5 mg atorvastatin. My blood work 6 mos ago was beautiful. Although I have been maintaining a low carbohydrate and low sugar diet, my blood glucose, A1c and cholesterol/triglyceride readings have all increased somewhat. I am puzzled and wondered if the Camzyos could be having an effect.

Jump to this post

I have been on those 2 drugs for over a year and my blood work is good. I take 15 mg ca.mzyos a d 20 of the statin. For sure each person reacts differently so worth watching.

REPLY
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