Newest and best long covid recovery treatments?

There will be national clinical trial on the use of "Pacing" to manage PEM. Here is a link to the announcement of the trial:
https://trials.recovercovid.org/documents/RECOVER_ENERGIZE_Brochure_StructuredPacing_V1.0.pdf
Here is a link to a website with instructions on how to do "Pacing."
https://longcovid.physio/pacing
The study site where I'm in the RECOVER-VITAL clinical trial has applied to become a site for the RECOVER clinical trial of Structured Pacing. (Endeavor Health, Evanston, IL) I hope to participate in that study. In the meantime, I'm keeping a log of my periods of Activity and periods of Rest, and getting increasingly sensitive to internal sensations indicating when I need to end a period of Activity, and turn to Rest.

Also, see the comments under the Posting on this website about the RECOVER clinical trial.

Hi everyone,
My journey started back in 2021, after having a very mild case of Covid, with multiple symptoms that really didn’t arise until about five months later, with heart issues being the most troubling. Elevated heart rate just sitting down, irregular heartbeats (pvc’s, svt’s and pac’s). Went to two different Cardiologist, heart disease and an electrophysiology. Had a stress test, echocardiograms, heart monitors, C Scans, Transesophageal procedure, even had an EP study performed, didn’t reveal anything serious (their words), just the above mentioned irregularities. I was told by both doctors that the only test left was a table tilt test but even if the results are positive there is no cure only management. So we tried a few different beta blockers, it did help the elevated heart rate but not the arrhythmias. And both told me I can take them as needed but it’s not necessary or a requirement to take them based on my test results.
Some months later I found on my own a LC Clinic here in NYC, my LC doctor performed a “simulation” of a tilt table test, meaning he had me lay down flat with a blood pressure and heart rate monitors for 10 minutes, then had me stand up and said he believes it’s Dysautonomia (POTS) he too said I can only manage the symptoms; lots of water and salt, compression garments but that’s about it. I don’t feel he was being dismissive just straight to the point. After three years I’m at the point of trying to accept what is. Of course I hope I get better but I’m also realizing that this condition/illness is unpredictable I don’t know what to expect. I try to push through the bad days and enjoy the not so bad ones.
Sending positive thoughts and prayers to all for complete recovery and happier days.

I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I need a beta blocker for my heart rate. Unfortunately, after covid my beta blocker stopped working effectively and I’ve yet to find a med that helps the extreme Brady/tachy. I’m very well researched in pots though if you need any advice. I’m happy to help. Not everyone is as hard as me with stubborn symptom mgmt.

There is a treatment which is beyond the financial means of most but I’ll mention it - the Aviv Clinic . They have a protocol centered on HBOT and the research of a Dr Efrati , an Israeli neurologist and researcher . The results are substantial and the benefits sustain for more than a year or more . Search youtube testimonials of Aviv patients . There is one in Florida and the other is in Dubai - world class

Hi everyone,
My journey started back in 2021, after having a very mild case of Covid, with multiple symptoms that really didn’t arise until about five months later, with heart issues being the most troubling. Elevated heart rate just sitting down, irregular heartbeats (pvc’s, svt’s and pac’s). Went to two different Cardiologist, heart disease and an electrophysiology. Had a stress test, echocardiograms, heart monitors, C Scans, Transesophageal procedure, even had an EP study performed, didn’t reveal anything serious (their words), just the above mentioned irregularities. I was told by both doctors that the only test left was a table tilt test but even if the results are positive there is no cure only management. So we tried a few different beta blockers, it did help the elevated heart rate but not the arrhythmias. And both told me I can take them as needed but it’s not necessary or a requirement to take them based on my test results.
Some months later I found on my own a LC Clinic here in NYC, my LC doctor performed a “simulation” of a tilt table test, meaning he had me lay down flat with a blood pressure and heart rate monitors for 10 minutes, then had me stand up and said he believes it’s Dysautonomia (POTS) he too said I can only manage the symptoms; lots of water and salt, compression garments but that’s about it. I don’t feel he was being dismissive just straight to the point. After three years I’m at the point of trying to accept what is. Of course I hope I get better but I’m also realizing that this condition/illness is unpredictable I don’t know what to expect. I try to push through the bad days and enjoy the not so bad ones.
Sending positive thoughts and prayers to all for complete recovery and happier days.

I had ‘postural hypotension’ diagnosed this January on a tilt test table; I thought I had self diagnosed PoTS but the Falls specialist said definitely not that heart rate went up to 135 ish as compensation as my BP plummeted from hypertensive at normal rest to 60/40 after 8 minutes standing. My GP had me on 5 hypertensive drugs, the falls expert removed two, but my GP has put me back on one…have you found a drug ( that might be available in UK) that copes with this hyper/ hypo tensive yo-yo…it’s very disabilitating and can only walk short domestic distance, or weekly with supermarket trolley ( but cannot stand at check out)?

I read Mt Sinai in nyc has a LC clinic.
I don’t know which LC center you went to, but you might want a second opinion.

I was diagnosed with POTS a month ago and Fludrocortisone hasn’t worked yet. I have a 3 mo follow-up and he mentioned if this doesn’t work, there are other meds to try.
I can’t find info on how long it takes Fludrocortisone to work. Anyone know?

I’m in the US and we have many supermarket delivery services. I love online shopping and delivery to my kitchen!
Find whatever services are available where you live and save your energy for something fun like an occasional short lunch.

I had ‘postural hypotension’ diagnosed this January on a tilt test table; I thought I had self diagnosed PoTS but the Falls specialist said definitely not that heart rate went up to 135 ish as compensation as my BP plummeted from hypertensive at normal rest to 60/40 after 8 minutes standing. My GP had me on 5 hypertensive drugs, the falls expert removed two, but my GP has put me back on one…have you found a drug ( that might be available in UK) that copes with this hyper/ hypo tensive yo-yo…it’s very disabilitating and can only walk short domestic distance, or weekly with supermarket trolley ( but cannot stand at check out)?