1. < MAC & Bronchiectasis

extreme constant fatigue

Posted by lilianna @lilianna, Sep 7 12:01pm

Has anybody experienced constant fatigue? I have bronchiectasis and have been treated for MAC. I used to have days of fatigue but recently it is every day and constant. I wake up, do the airway clearance, and then it comes again. I drag through the day, force myself to do things and live but I really have to lie down multiple times a day. My family doctor checked blood (fine), vit d3 (70 so OK, before was 40), magnesium (fine), and vit B12- low -started taking 1000mg every day. I eat healthy, take vitamins but Istill feel so miserable and unable or willing to do anything. My eyes are closing as soon as I sit down. I know from this forum it can be BE or from the meds (azythromycin, ethambutol and clofazimine the last 16 months). I used to have better and worse days before but since the time I had a viral infection in July it got so much worse. If you fell or felt the same what did you do? Thank you for your thoughts.

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celia16 | @celia16 | Sep 11 7:42am
In reply to @lilianna "When I talked to my doctor complaining about fatigue she walked me if I snore. Honestly..." + (show)
@lilianna

When I talked to my doctor complaining about fatigue she walked me if I snore. Honestly I don’t know, may be I do. But I think it’s the meds. My immunologist ordered immunoglobulin M and G with subclasses and unfortunately M is ver low and G subclass 2 is very low. I will see my ID doctor next week and will discuss all this. I also got my first vit12 shot. In the meantime I do things and rest, and rest again.

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You can inquire about a sleep study to measure how you’re breathing at night, but to get a quick gauge on snoring, you can get the app Snore Lab. It records your sounds throughout the night and provides a chart of any snore sounds. You can listen to any sounds you’ve made during the night. I think there’s a free version of it available.

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lorifin777 | @lorifin777 | Sep 13 7:42am
In reply to @kwi "I’ve had two periods of fatigue similar to yours. The first one was a year and..." + (show)
@kwi

I’ve had two periods of fatigue similar to yours. The first one was a year and a half ago. For a couple of months I was constantly laying on the couch, often sleeping. I’d cook, go lay down. Load the dishwasher, go lay down, sleeping a lot. After a couple months, I realized that it probably the medications I was on for a heart arrhythmia. I saw my cardiologist and he switched me from metoprolol to a different med. Helped so much. These past few months I’ve been experiencing being so very tired. What I didn’t get done in the morning, didn’t get done until after a two hour nap in the afternoon, if then. I hadn’t had a change in anything and finally dropped off a sputum sample for the pulmonologist. My results came back with heavy growth of Haemophilus influenzae. So he has put me on a 10 day antibiotic (not azithromycin).
Otherwise, I’m not receiving treatment my bronchiectasis or mac other than nebulizing 7% saline and doing airway clearance.

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What is saline therapy?

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kwi | @kwi | Sep 13 10:48am

Saline therapy is using a nebulizer to inhale 7% saline (comes in little vials). It helps thin mucus so easier to expel and the saline in your lungs helps make them not as hospitable to bacteria. With bronchiectasis, you are susceptible to many types of bacteria if not careful.

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