DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's
I would like to connect with someone with DISH disease. I saw one post about someone recently diagnosed with this, but can't find it again.
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I am too a dish patient. I have bone spurs in my shoulders, and I have arthritis in my toes, my feet ankles, knees, hips I believe I even have bones spurs in my elbows. I feel like I have a lot of tendinitis as well which spine specialist said is one of the hardest things with dish I’m a frequent flyer at pain management. I just got bilateral RFA’s on Thoracic back.
Of course I’m overweight and I do have some cholesterol issues which we are ready to switch medications and see if that helps a little bit. I am also diabetic, but my numbers are good except for when I get steroid injections then they go up for a little bit, but usually back down to baseline less than a week. Diabetes is well under control. I feel like I’m wrecked with pain and I think I Noticed the first signs when I was about 30. I had bone spurs in the back of both heels and the bottom of both heels. But didn’t know what it was until just a few years ago.
I work in a very stressful job and healthcare and it’s getting even more stressful with whole hospital integrated computer system. I’m sure all the extra stress doesn’t help my condition either. I have been amended from some of my duties at work but still a lot of stress and I try to do as much as I can even though I shouldn’t be doing what I’m doing. Lately I’ve been working upwards of close to 50 hours a week, and maybe more coming up once the computer system goes live .
Of course we all know stress doesn’t help our physical self or mental self.
I wish you all luck and good providers with this disease. I am trying to avoid any kind of surgeries if possible. I’ve had enough in my lifetime already.