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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@bobweller

I was on 2 Hep C treatments back in early 2000. Each involved interferon and ribavirin.
The interferon was different each time. My viral load was the target of each treatment since I had a rare genotype
3 of Hep C. Doctor said it would not likely cure me but it will reduce the viral load. They gave me a liver transplant in fall of 2000. I did haveva short treatment of just interferon prior to my transplant in the summer of 2000. The 2 other followed post transplant. I had no lingering side affects that I was made aware of. Then in early 2014/2015 the newer medicines came out for Hep C and I tried 2 treatments with 2
different medications. Finally in early 2016 there was a negitive viral load. By this time I was so sick again that the doctors performed my 2nd liver transplant in summer 2017. Since then no Hep C and the transplant has done well.

I do recall my 3 interferon treatments, 2 with ribavirin. The ribavirin made me real sick both times. I had to work from home since I could hardly walk around, I shook all over, had joint pain, vomited a lot, I felt spacy. My blood cell counts were real low so I was injecting both red and white blood cell
treatments daily. After treatments, after a couple months I felt OK.

This was living hell since I worked in IT and was a database tech guy at work. I needed a clear head and energy to sit and work on 3 terminals at my desk and 2 at home sometimes up to 24 hours during emergencies and large project installations.

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Replies to "I was on 2 Hep C treatments back in early 2000. Each involved interferon and ribavirin...."

I'm sorry for all your suffering. that is a lot to handle. I was part of the experimental trials in 2012/13 for the new med that has a 90?% cure rate. I did get cured. I do have serious mystery issues that keep me grounded now. Chronic EBV and Autonomic Dysfunction 🙁