Long Covid?

Posted by imshirlee @imshirlee, Aug 22 10:34pm

I had Covid in late Dec 2022 into 2023. I was reasonably healthy and active up til then. After Covid I was diagnosed with heart failure and pulmonary fibrosis which my doctors say were “Covid induced”. When I was admitted to hospital for Covid I was on two medications, (thyroid and anxiety) and seeing my GP on 6 month follow ups. After being dismissed from hospital I’m seeing five different doctors (cardiologist, pulmonary fibrosis, RA, & GP and I’m on enough medication to start my own pharmacy. After researching the drugs I’m sure they are part of my problem. Treatment and regular follow up appts are almost weekly which is something I’m not adjusting to well. I’ve always been active with a regular workout schedule.
Just being totally honest I’ve reached a point that I don’t have confidence in those treating me. I feel if I could go to a major clinic for complete check I would be taken off most of the meds. Every time I go to follow up visits I’m given another drug. I’m pushing to stay active, working out twice a week at my local “Y” which is a lot for my age (87) but I feel side effects from some of the drugs is main problem.
Anyone else here have Covid induced illness?

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kellysmail2016 | @kellysmail2016 | Sep 9 6:34pm

In reply to @afb10 "Hi, my 7 year old son is one week post Covid. Since then he has started..." + (show)

He is so young. I would go to Dr. It does seem normal for adults but I would hate to say that for a child good luck and hope he feels better.

suesmithrn | @suesmithrn | Sep 13 9:13pm

Love and prayers. The covid pain. My new doctor, amitriptyline for the nerve pain . Its not a magic bullet,but it helps. God bless you

laurajeanm | @laurajeanm | Sep 14 10:28am

Please read

kellysmail2016 | @kellysmail2016 | Sep 22 5:56pm

I completely understand. I too have 5-6 Drs. Went from 1 prescribed medication to 17-18 now. Am bed ridden a good 4 days a week. I learned (I’m not sure this is about everyone) that exercise causes more pain and fatigue than not doing it. I really don’t think Drs are well versed, if at all, on LC. So many stories. 3 months, 6 months and maybe a year max till LC goes away. They are shooting from the hip. Other countries seem to know more about it in my readings. Though, Harvard, John Hopkins, Mayo and few others are making progress. I guess all we do is wait. I’m 4 + years now since Covid #1. I’m getting worn out. Best of luck at the spry age of 87. 🤗

imshirlee | @imshirlee | Sep 22 6:29pm

In reply to @kellysmail2016 "I completely understand. I too have 5-6 Drs. Went from 1 prescribed medication to 17-18 now...." + (show)

I did an in-depth research of the drugs I’ve been prescribed.
The drug I’ve been given for pulmonary fibrosis “can actually cause pulmonary fibrosis OR if you already have it, can make it worse”. The drug I’ve been given for my heart failure “can worsen the symptoms of heart failure”
What am I missing here ??

imshirlee | @imshirlee | Sep 22 6:37pm

In reply to @imshirlee "Just one example of my comment about meds :::: In checking a drug recently prescribed for..." + (show)

Exactly my problem. Both drugs I’ve been given (for heart failure and PF) are known to make these conditions worse.
What the heck is going on with this? I questioned this and was quickly considered “non compliant “.
Strangely when I forgot to take the meds one morning I felt so much better!
I’m about ready to dump them all.

kellysmail2016 | @kellysmail2016 | Sep 22 11:10pm

In reply to @imshirlee "I did an in-depth research of the drugs I’ve been prescribed. The drug I’ve been given..." + (show)

Omg. I have noticed you have to be aggressive in finding your own diagnosis. I have been to 25 visits to various Drs that mean anything. Finally fired a Cardiologist on my first visit and asked for her head guy to see me. Thank God because he at least is working to help. She just wanted to say POTS. and walk away. I went for swelling (edema now entire body) with chest pains and racing. Never even touched me and handed me a photo copy of a 1 page POTS document. Stopped her and asked for another Dr.

kellysmail2016 | @kellysmail2016 | Sep 22 11:11pm

In reply to @imshirlee "Exactly my problem. Both drugs I’ve been given (for heart failure and PF) are known to..." + (show)

What did they put you on?

imshirlee | @imshirlee | Sep 24 10:54am

In reply to @kellysmail2016 "What did they put you on?" + (show)

Metoprolol
Macrobid
Prednisone
Hydroxychloroquine
Azathioprine

kellysmail2016 | @kellysmail2016 | Oct 2 2:42am

In reply to @imshirlee "Metoprolol Macrobid Prednisone Hydroxychloroquine Azathioprine" + (show)

I’m on Metropolol. I have SVT and HBP.
Have taken the steroid Prednisone but only thought that was a quick maintenance drug??
The Hydo… lol is a diuretic, right? I switch to generic LASIKs. I still swell either way. The azathioprine never used. Saw it was for organ rejection after a transplant. It can also treat rheumatoid arthritis??? Are you still off them all? How you feel?

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