Hi @loribmt

Thank you for your kind words. I am glad to share anything I can. I'm very grateful to have found this support network. Although my progression (fortunately) has been slow, it has been always on my mind. Recent changes have me keeping my guard up. It's really great knowing there's a network of support for all of us experiencing this disease. I hope anyone feeling frightened or alone can be comfortable reaching out to me. We're in this together. One thing I've learned is to always try to appreciate my life, my family, my friends. I try to take one day at a time. And I always ask questions... even if they seem irrelevant. Knowledge is power.

And yes, I am still working.I have been in practice as a nurse for nearly 40 years... the last 21 as a nurse anesthetist/anesthesiologist..