Anyone experienced dizziness or optical changes with exemastane

I tried 3, and then gave up. That was 4 years ago. I still cannot bend my fingers and have problems with my feet. Brain fog, depression, and crippling side effects are what made me stop. I took it for 6 month and the joint pain was immediate. My eyesite is an ongoing issue, and right now I suffer dry eyes. I felt and still feel today that this drug has not proven itself necessary, when you still have to go through radiation, and sometimes chemo. I did radiation and I am finishing my 5th year cancer free. These tyrials are not done with the patient at the forefront, and are run through by big Pharma. The fillers in these drugs are crippling. I am happy I stopped when I did. I still dont know for sure the amount of damage done to my body in the long term. Some people can take these with no issues showing right away. I was not one of them.

I started with anastrozole in 22 fir a while,been.on exemestane now for a while..both terrible painful side effects. I had a history.of vertigo before the cancer. Still get dizziness. I take half a dramamine daily..helps a little.
I noticed on my bottle of exemestane there is a sticker. That says may cause dizziness.
I research a lot and read that after meno the mucus membranes in the body( including the tube's in our ears) get less sticky. So the little crystals in our ears get loose and bounce around causing dizziness.

I took anastrozole for a year but switched to exemestane for 6 months now. Anastrozole made my fingers so stiff and my eyes so blurry. Exemestane reduces the finger stiffness at first but it’s coming back slowly. My vision still has not improved. My eye doctor recommended lubricant eyedrop but it doesn’t help much. I didn’t have chemo so I feel that I need to take AI to reduce the chance of local recurrence. Wish you all the best.

I agree! I am not one of them either. After 3 weeks on Letrozole my hands were crippled with carpel tunnel. I had bilateral surgeries on my wrists and elbows to release the nerve that was damaged. Next I tried Anastrozole the hand pain started again and the brain fog was debilitating. Currently I’m on exemesatane for 4 weeks now… the vertigo is sooo bad that I’m having trouble walking straight and my eyesight is getting worse.
I’ve tried all 3 🙁
I completed my radiation one year ago. No chemo. My quality of life has went downhill but on the other hand I’m terrified not to take something. I hate big pharma. It’s a big business. How do we know that we can trust them??
There’s so many factors involved.
Blessings to you ❤️

There is only a 5 percent chance gained that it will not return. Cancer is always in our bodies. I gave up on the drugs because of the damage it does to my other organs. I now eat a plant based diet and do not ingest ANY oils, as they never leave your body. I have on last appt, and I am confident I will not have a recurrance of breat cancer. It just wasnt worth it to me. I believe with surgey and radiation, my cancer was cured. These drugs havent been around that long to prove its need. It is all still in the testing stages, and they only follow the ones that are on the drugs, NOT the ones that dont take them. How do we know that in 20 years the damages to other organs will be more dangerous. But Pharma only follows the ones taking the pills...........

My same thoughts and feelings. I have the same no chemo, but radiation and since I started this meds my life qualify went down hill. I have terrible constipation from this and my hips feel like they are about to come off.

100% agree!

I tried all three of the AI inhibitors. All caused me to go to the hospital with an allergic reaction. I made the decision to no longer take the medicine. My oncologist understands and has not pressured me to try another. I was on the AI inhibitors for 2 1/2 years. Still many of the side effects linger.
Yes, I worry every day about my cancer returning. I have lost weight I am now below my normal BMI, I drink no alcohol and I walked 10,000 steps a day. Plus, I pray everyday my cancer will not return. I am at peace with my decision to end the AI inhibitors.

I learned the hard way that the AI drugs increase the growth of cataracts. Shortly after I completed my 5 years I had to have cataract surgery. I was 68. Just be aware.

Recently my optic nerve in eye became very damaged and glaucoma much worse. I was taking exemestane...4yrs now. Off the drug while trying to figure it out with drs.