Anyone experienced dizziness or optical changes with exemastane
Hello
I’ve tried letrozole, anastrozole with terrible side effects. Now on exemastane for 4 weeks. I’m experiencing much dizziness and found out at my annual eye dr spot that my optic nerves are damaged. Anyone else have this side effect?
The letrozole damaged my ulner nerves in 3 weeks causing me to have bilateral cubital/carpel tunnel surgery. The anastrozole made my brain fog so bad I couldn’t function. Im trying this 3rd AI and why would it be different lol. I’m fighting!
Blessings to all!
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I'm on VERZENIO and I'm on my 4th day of extreme dizziness. Taking Meclizine (prescribed) to help. Called the pharmaceutical company and they said their stats show 12 out of 2,000 women had extreme dizziness. These drugs (ALL of them) are very powerful and I believe in time, will prove to have many side effects that are long lasting.
I have a bit of vertigo with Exemestane. Also, hair loss and mild joint pain and stomach cramps.
Mild joint pain, sleeplessness at times , some hair loss but I don’t think more than normal… but I do
Walk
Healthy yoga
Pranayama
Acupuncture
Watch what I eat
Coconut oil daily for vaginal
Added supplements - created for me by my acupuncturist (who is also an oncologist
You are doing it right!
I walk daily, lift heavy weights at the gym, stretch, gluten free, very low carb ketovore, only consume local veg and meat, seafood. Supplements.
My hands are getting worse. The AI meds have done permanent damage even after discontinuing. I’m an artist. I need my hands. My art is my mental health!
Blessings to you ❤️
Am in sorry you have permanent damage. I am really keeping track of changes all things etc to my body while on this medication . I’m 61.
Thank you. I’m a young 70! I had no medications or limitations before the evil invader of my breast.
I was on Xeloda (affected my hands and feet) then Anastrozole (made me terribly moody) and am now on Exemestane. I am gaining some weight and still moody. I have also lost ALL my sense of taste and smell. Not sure if that's from the medicine or just from chemo and treatment in general. It's been gone for a couple years now. It's very depressing, but I'm trying to learn to live without it!
I’m sorry that’s terrible. After trying the 3 AI’s and finding them intolerable my Dr has suggested tamoxifen.
The side effect of blood clots and stroke scare me. I don’t have a uterus so I don’t have to worry about it causing uterine cancer…but knowing the drug can cause this makes me uneasy about what it can do to the rest of my body.
I’m low risk for reoccurrence and seriously
close to the point of not putting any of these evil drugs into my body. They are just horrible but so is BC.
I understand..................we don't have much of a choice. I think my mom was on tamoxifen (this was many years ago......she also had breast cancer) and she had a full head of beautiful silver, grey hair. She has passed, but lived to the ripe old age of 90! I never noticed her hair falling out so maybe it's just that everyone is different. Try it and see............that's about all you can do. Best of luck to you!!!
Exemestane made my cataracts grow faster. I needed surgery just after I finished my 5 years at age 68. Just be aware.