1. < Lung Cancer

Non Small Cell Carcinoma Adenoma

Posted by bestcare @bestcare, Sep 3, 2016

in 2013 we discovered my cancer. so far I have had 3 surgeries. The last one showed metastisis. It has left the lft. lung. so far we are still waiting for 3 mos. to repeat the PET Scan. for more growth. I pray I am in good hands. Does this sound like the best way to go about my treatment. Just treating sxs. as they come. Monoclonal drugs won't work with my cancer. So chemotherapy would have to be done. or Immuno or Intergrative or trial. Not sure I'm doing the right thing. Can anyone help me with this decision? Bestcare

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shortshot80 | @shortshot80 | Sep 5, 2016
In reply to @irvkay312 "I'd strongly suggest that you further research or even contact Tuberous Sclerosis Alliance from what you've..." + (show)
@irvkay312

I'd strongly suggest that you further research or even contact Tuberous Sclerosis Alliance from what you've said. Adenoma Sabacum which I've had since 13 was diagnosed with a Woods Lamp as Tuberous Sclerosis. It travels and goes to major body organs and can also be seen as Ash Leaf Spots and Shagreen Patches around or at waist. TSC 1 and TSC 2 malfunction at time of conception is believed responsible as are family genetics. It also can be a carrier and slow growing cancer that is capable of mestasizing to other organs. Check it out more thoroughly to see other aspects.

irvkay31 Mentor

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Hi, thank you for the info, I have a cat scan sometime this month, and will also have a oncologist visit also. Will print your info and see what the doc says. Nancy

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bestcare | @bestcare | Sep 5, 2016
In reply to @johnwburns "So very sorry to hear of your troubles. While its wise of you to ask a..." + (show)
@johnwburns

So very sorry to hear of your troubles.
While its wise of you to ask a community of other patients what their opinion of your treatment might be, if you are deeply questioning whether you are on the right track perhaps you should consider getting a second opinion from another specialist or clinic. Apparently the benefits of a second opinion might be in question but there also seems to be a chance that they can help in some cases. Here are Mayo's guidelines for getting one should you decide to:
http://www.mayoclinic.org/diseases-conditions/cancer/expert-blog/cancer-treatment-second-opinion/bgp-20056385
Since the Mayo site recommends an NCI Treatment center for second opinions, here is the tool to find one:
http://www.cancer.gov/research/nci-role/cancer-centers/find
Advice and support from other patients and support groups like Connect is always useful, but take advantage of every tool at your disposal. So, here is the NCI Patient Version of treatments for your cancer. Stay optimistic. Its going to be alright.
http://www.cancer.gov/types/lung/patient/non-small-cell-lung-treatment-pdq
Hope this helps.

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I went for a second opinion and I felt the Dr. hesitated on the decision to wait 3 mos. I was left with that feeling. It leaves doubt in my mind. Just not sure and feel uncomfortable now about the decision. So I'm going to write her and ask if this is the best way. thank you for your reply.

Bestcare

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Linda | @llwortman | Mar 19, 2017

Hi Bestcare:
I have been thinking of you. I hope you are having a good weekend. You shared some great comments about your journey, and it would be great to hear from you again.
Linda

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