Unexplained Sensations and muscle twitching

You should seek out physician therapy for your back issue before you try anything else. Surgery is your last resort but do you have a diagnosis?

I recently was diagnosed with BFS. Twitching in the right hand to the calves to many other areas of my body. Like you, I have no loss of strength and can walk for miles without issue but have lost weight and my BP fluctuates a lot.
I am not on meds yet and have had MRI’s, EMG’s and CT Scans. So far, nothing conclusive but still have the twitching. It consumes my thoughts which is destructive. I don’t feel myself anymore.

Yes have had the same for 2 years. Thought I had a nerve disease all tests came back normal. Exercise and diet change helped. But I still have them just not as bad. I feel my thoughts did this to me. When u stress and think about bad things like fear of getting sick.

I am so sorry for all your symptoms with no apparent resolutions. Have you considered a physician or self referral to a larger medical facility for a thorough work-up, ie Mayo, the Research Triangle (my favorite), John Hopkins, Temple etc. These places seem to be a little more Medically intellectual and may go deeper into differential diagnoses. I find most physicians prefer straightforward issues with easy fixes and care not too much for the complex cases.

I am wondering if your doctor has checked your vitamin & electrolyte levels? Do you tend a garden; thinking of pesticide exposure. I worked with a doctor who emphatically stated that it is always prudent to check the diet & vitamin/lytes levels. Twitching especially comes to mind when I think of vitamin deficiencies. I'm a retired nurse, btw. Hope you find a solution.

I contacted the Mayo. I sent a worksheet with all my symptoms and recent history to them under their suggestion. A week later, I received a cover letter style email apologizing that they didn’t have enough resource to take on my issues. Couldn’t believe it! I have since sought assistance with a local neurologist, my family doc, my cardiologist and my gastro doc. I have had many tests including an EMG for nerves and muscles, MRI of my neck, upper and lower spine, blood tests and thyroid test, and all are normal. I still have a MRI of my head and an MRA of my neck as well as a CT scan of my abdomen scheduled in the next couple days. Lastly, I do have a follow up with a neuropathy specialist at the local university hospital network. So, think I have a lot of test data but it really doesn’t explain why or how I got BFS. Some suggest it may be a reaction to a virus I had a few weeks prior to me recognizing my thumb twitch but can’t say for sure.

I do help my wife garden and have applied pesticides but very infrequent and not a lot at a time. I think the exposure would have to be intense to experience what I am going thru?

Has anyone mentioned BFS to you? Many of your symptoms are consistent to those that have BFS. Others could be brought on by anxiety which is certainly understandable considering what you have gone thru.
The good news is as annoying as BFS can be, it is not harmful. It can slow you down and sometimes give you a feeling of muscle weakness or cramping but it is not harmful. It can also come and go and can create twitching at any part of your body. No area is off limits.
I have been diagnosed for a couple weeks. It started with my thumb and index finger, to my other hand, went to my calves, to my thighs, to my left eye and even to the side of my body. The constant is my calves especially my left calf. All the others are now random.

Retired nurse as well and I have the exact same thoughts. If you're retired then you have been around when physicians did differential diagnoses in order to drill down on the real issue. I agree 100%

Yes!! I held a care provider jib in an Alaska Bush Village where I was taught to do that. It just makes sense. No stand alone diagnosis right at the start (some exceptions) are “it”—that’s why we examine, test & consult.