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CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Aug 2 11:42am | Replies (117)

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@ssid

Yes, the tube was put in on Dec 1st, and I was told I can leave it in or remove it in 6 months, my choice. The constant sound of my heart beat in the ear is hard to adjust to, not sure this is normal. I will call the ENT this Friday and voice my concerns. The tube did relieve the pressure I was feeling but did not correct the muffled hearing. I am guessing an enlarged lymph node is involved. I also have an enlarged gland, the size of a large gum ball, on my jaw line which I have been told is a salivary gland or lymph node ....the ent and oncologist can not agree. I will throw myself into Christmas for now and see what the oncologist has to say when I see him in January.

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Replies to "Yes, the tube was put in on Dec 1st, and I was told I can leave..."

Have you consulted a CLL specialist? I encountered non-specialists who were either ignorant of or disregarded guidelines for diagnosis and treatment of CLL issued by the International Workshop for CLL. I met criteria for treatment based on lymphoma symptoms, but the doctors wouldn't consider treatment prior to late rai stage. If you are having serious ENT problems secondary to enlarged lymph nodes, maybe it is time to consider CLL treatment, such as with Imbruvica.