← Return to Antisynthetase Syndrome: Anyone else?

Discussion

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Sep 8 2:29pm | Replies (71)
Comment receiving replies
@cantek

Hi John and @breas ,
I too am diagnosed with Antisynthetase/ ILD and Myositis.
I am under the care of Dr. Pais the head of UF’s Myositis / ILD Dept.
I failed all oral meds ( GI side effects) and am currently receiving IV Rituximab every six months and doing well.
If I can help in any way let me know.
Kim

Jump to this post

Replies to "Hi John and @breas , I too am diagnosed with Antisynthetase/ ILD and Myositis. I am..."
breas | @breas | Sep 8 12:08pm

Hey Kim,
I am glad you tear you are doing well! I am currently on Steroids and CellCept and have had some relief. My joint pain and shortness of breath is still a concern. I am getting my first infusion of Rituximab in two weeks, another two weeks after and then every 6 months. I am really hoping this is going to get me back to semi-normal. I too have GI issues, I have been hopitalized with 6 blockages in my smal intestine over the last four years. The only good news is that helped me get to the real diagnois I had been searching for. 🙂
Any advice for my first infusion coming up?

VIEW AND REPLY