Double lung transplant

Posted by francisanne @francisanne, May 5, 2021

I have stage 3 emphysema. I m 40 years old and have been told I need to have a double lung transplant. I have been approved anf if I decide to do it the process will start in October. I am having a difficult time making the decision to have it or not, you see i don't really have any symptoms apart from slight breathlessness sometimes (the doctors are a
bit bewildered as to how I hve less than 31% lung función but i am still riding my bike etc and living a very 'normal' life. I have heard the phrase 'your symptoms don't match the severity of your condition' countless times by the doctors here in Spain.
I have read all the side effects and survival rates abd it seems very bad, with info about kidney failure and all sorts because of the medication and that's if you survive the operation. I was hoping to connect with someone who could maybe reduce the anxiety a bit by telling me a positive story about their experience. As, at the moment, it seems like a terrible option for me compared to the quality of life I have at the moment (although again the doctors keep telling me this is going to get worse burn I try and stay positive in mind and spirit as in the last 5 years there has been no progression in my lungs nor have any of my organs suffered eventhough I was not given treatment of any kind until March last year and only started with the oxygen machine last July, which I still only use when doing exercise or long walks)

Thanks so much for any help you can give me

Sending out love and kindness to all.

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Where did you have your transplant?

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You are remarkable for your status of disease. I don’t know how old you are or if you’re married with children, but I would wait until you feel a lot worse or until you can’t do the things you’re doing now. Discuss it with your family and PrayPrayPray about it. It is a hard road to choose if you get the transplant, but I’m glad I did, even though mine wasn’t so successful. Otherwise, I would have died by Christmas 2018 at age 60. Trust in God, He will lead you to the right path. Good luck♥️🙏🏻

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@kathy103

You are remarkable for your status of disease. I don’t know how old you are or if you’re married with children, but I would wait until you feel a lot worse or until you can’t do the things you’re doing now. Discuss it with your family and PrayPrayPray about it. It is a hard road to choose if you get the transplant, but I’m glad I did, even though mine wasn’t so successful. Otherwise, I would have died by Christmas 2018 at age 60. Trust in God, He will lead you to the right path. Good luck♥️🙏🏻

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Hi @kathy103, a belated welcome. I understand from you profile bio that you experienced rejection. Despite that, you're glad you choose transplant. I look forward to getting to know more about your story. What led to your needing a transplant? How long did you have before your experienced rejection? How are you doing now?

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