Mysterious shortness of breath: What has helped you?

Posted by Gabe, Volunteer Mentor @gabrielm, May 31, 2018

I will try to make this as short as possible, but this has been going on for over 5 years, so it might be farily long. 

Beginning in summer of 2012, I began having shortness of breath (SOB) with no other symptoms. I felt a constant need to yawn, and every few breaths wouldn't satisfy the SOB. I would take a deep breath, and felt like it would get "stuck" before satisfying the air hunger feeling. About every 3-5 deep breaths would satisfy it, only for it to return a minute later. 

I got an endoscopy and other tests done, which revealed that I had some esophageal erosion due to acid reflux and a slight hiatal hernia and was diagnosed with GERD. I had always have bad heartburn, so I was prescribed with Prilosec, which I have been taking daily since them. I've tried stopping it a few times but the reflux always comes back a lot worse. 

Lung tests and x-rays were normal. Heart tests normal. Blood test revealed a slight anemia but otherwise pretty normal. 

I did some research reading forums where someone suggested taking vitamin B-12. Strangely, I took it and the SOB disappeared almost instantly. However, it only lasted a few days for it to return just as bad. I then started taking an iron supplement, which again made the SOB disappear quickly- same thing; symptom returned days later. 

After further research, I came across a breathing exercise method called the Buteyko method. Essentially you do a lot of breath holding to build up CO2 and reduce breathing as the theory is that I had chronic hyperventilation causing too much CO2 to exit my body. After applying the method and reducing my breathing, the SOB disappeared after only 2 days and I felt completely normal. I continued the method a few more days then no longer felt the need to pursue the exercises. I was normal for a whole year when the SOB once again returned with some chest tightness. I applied the method again and the symptom went away, this time with a little more effort; after about 3 weeks. I included physical exercise which also helped with my breathing. 

After that, I was normal for about 2 years. I mistakenly stopped or at least slowed down exercise and the SOB returned once again. I applied the method and began running for exercise but the SOB kept getting worse. It got so bad, I had multiple panic attacks and the feeling of completely empty lungs with the inability to satisfy it with deep breaths. I had to stop exercise altogether, apply the Buteyko method and do breathing exercises very carefully with very light and slow exercise. This helped, but it took many weeks for the SOB to improve. Then, it was almost normal when over a year ago as I was running, I couldn't get a deep breath to satisfy exercise-induced SOB. I have had SOB continuously since then (a year and a half). 

I once again started doing breathing exercises and slowly building up physical exercise, but I can't do any prolonged cardio activity because the SOB gets to a point where deep breathing will not satisfy it. While the breathing exercises have helped, they have had very little effect compared to previous efforts. It seems that every time the symptom returned, greater effort yields few results.

I suspect there is something, some underlying cause that is causing the SOB that has alluded me this entire time. 

So for the past few months to a year, the SOB is worse on some days, better on others, but never gone. There's no rhyme or reason or pattern for it. It's just there, sometimes affecting my sleep. I sometimes can't get a deep breath to satisfy it every now and then, but for the most part, a big gulp of air will satisfy it. But it returns seconds to minutes later. It's as though every breath doesn't deliver what it's supposed to, the SOB builds up, and then I have to take a big gulp of air to get rid of the feeling, pattern repeats. My breathing pattern is normal, however. I don't feel like anything physical is happening, but sometimes it feels like my airways and nostrils are slightly inflamed due to allergies, but when I don't feel inflammation the SOB is still there. 

Recent lung function tests show normal- I don't have asthma, or any other problems with my lungs. Heart tests are normal though I did have about a two week bout of heart palpitations which came and went. Haven't had any for a while- it just mysteriously started happening then stopped. Blood tests are normal, though tests always show a slight elevation of biliruben which my doc thinks is Gilbert's disease. 

I don't have sleep apnea (normal test), bloody oxygenation is normal, heart rate normal. 

I recently saw local naturopath (since mainstream docs aren't able to help) who immediately suspected a liver problem when I described my SOB, possibly liver inflammation. He used an electrodermal testing machine to test his theory which did seem to show a problem with my liver and gallbladder. He gave me digestive enzymes and a gallbladder formula to help clear a bile duct clog, thus reducing liver inflammation. He also determined with the machine that I have an egg sensitivity so I've been avoiding eggs. 

Been taking this and avoiding eggs for a couple of months, but there has been no noticeable improvement. Everything else is normal. Emotionally I'm normal- no anxiety, depression, etc. The SOB seems to be the only symptom of something, but always comes back worse, until a year and half ago when it came back and has remained since. I feel like I shouldn't have to do breath holding exercises every day just to maintain my breathing well enough to do every day things. 

Does anyone have any idea of a possible underlying cause?

2021/2022 UPDATE:
Since my original post about 3-1/2 years ago, a lot has happened, so I’d like to update the post to share with others who come across this what I’ve done since then.

I have maintained a weekly Buteyko method breathing exercise regimen where I do a few of these breathing exercises 3-4 times a week in the morning. This, in combination with daily light to moderate exercise (specifically weight lifting, with 1 or 2 days a week of walking and light jogging), I feel has kept the air hunger symptoms tolerable and manageable. I have mostly good days with some not-so-good days, but doing a breathing exercise and knowing that it’ll get better again helps me get through those times.

I also have sinus inflammation which can exacerbate the symptoms, but I’ve also managed this, which in turn reduces the severity of the air hunger symptoms.

So, while I haven’t found a cure nor is the problem completely gone, I have been able to maintain normalcy in daily life and manage the symptoms through the strategies I described.

This discussion remains active, alive and well through the comments section where others who have similar symptoms have shared what has helped them as well as suggestions for possible solutions to explore.

Interested in more discussions like this? Go to the Lung Health Support Group.

@jjbasshealth

I was beginning to think I was destined to a short life as my breathing issues were getting worse and worse and stronger meds! My incredible immunologist said let’s do some genetic testing. He got ever test available as well and my genetic tests showed a gene mutation that affects carnatene levels and he started me a a carnatene supplement lowest level first and omg not kidding within a day I was breathing again and began the slow weaning off all of the steroids and albuterol and bonus no more constapation. I was troubled with that my whole life! In Buffalo ny, Dr Julian Ambrose, Jr. He is known as the Dr that can solve anything as he is not afraid of insurance companies only focuses on getting people that haven’t been able to get better better!! Hope this helps he also added L-acetlecyusyne spelled wrong .

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@jjbasshealth so glad you're better and found a solution. Thank you for sharing this. I'm sure it will help somebody who may be quietly browsing this forum looking for answers.

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have u ever taken any blood thiners?

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gabe
I am 79 and have had a sob for 50 years. A few comments:
1. Worse in fall and spring. Allergies?
2.Lot of mucus. Gerd?
3. Worse when I dwell on it. Mental?

I have had many tests ran and no problems are found. I do have gerd but not much else. I ride my
bike daily along with other exercises and seem to get along ok most of the time. Sleeping with my upper body elevated has helped me the most and that would indicate gerd or allergies. I will go 2 to 3 mos. with no problems and then it will occur again. My symptoms are about exactly the same as yours. I Can live with what I have but always lookin for more answers. thanks.

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@katgts

I’m so glad I came across this discussion! I have had the same thing for 3 weeks. I was sitting at home when suddenly I couldn’t take deep breaths. The only thing out of the norm for that day was I went to the gym for a 2nd time in years but was only on the cross trainer at the lowest setting for 30mins. This inability to take deep breaths came on suddenly about 3 hours later. I have been to numerous doctors and emergency rooms. Bloods, chest films, ECG, ECHO, lung function all came back normal. No doctor can tell me what this is. I was told pleurisy, so was on high dose of ibuprofen for a week which gave me bloating and doctor put me on omeprazole. But the ibuprofen didn’t help apart from the first day or two. They then tried antibiotics just in case but no luck. anxiety has also been ruled out. It feels like there is something in the upper part of my chest blocking the air. It also blocks burps from coming up and I am taking peppermint oil and lozenges to relax it. If I change positions it helps and I can breath but very quickly that position will stop working and I have to find another one. Sort of feels like now I have a weight on my chest, possibly from the constant effort to try and expand my chest. I am going on my honeymoon today and was hoping this would pass by now but looks as though I won’t be doing any swimming, nice long walks etc as just walking up one flight of stairs makes it hard to catch my breath. If anyone comes up with a miraculous cure in the next few days I would be over the moon to hear!

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Hello, greetings.
I have suffered the same situation for two months now. It all began in the gym, I have gone through several tests such as blood and tomography, there is nothing, not even a hiatal hernia.
In case you read this message, can you tell me if you feel better? or if you have found a cure?
Thanks.

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Hi Gabe, I hope you're doing well. I wanted to reach out because I've been dealing with similar shortness of breath issues and was curious about how you're currently managing your condition. Have you found any more definite terms or diagnoses, and have you discovered any lasting solutions or treatments that have made a significant difference? Any insights you could share would be greatly appreciated, as I'm still searching for answers myself.

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@davidcg

Hello, greetings.
I have suffered the same situation for two months now. It all began in the gym, I have gone through several tests such as blood and tomography, there is nothing, not even a hiatal hernia.
In case you read this message, can you tell me if you feel better? or if you have found a cure?
Thanks.

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Hello there, after a while and a lot of convincing I had to accept that I had had a panic attack that remained on going at a very low level and anxiety on top of it. I don’t take anything for either and haven’t had an attack since but every now and then anxiety will build up which makes it hard to breathe so I take a moment away from everything and calm down. I never had panic attacks before this or any feeling of anxiety which is why I found it so hard to accept. But one doctor explained it quite well. When this all began, that year I had spent 5 months looking after my mother who had terminal breast cancer and sadly passed. Being the oldest child and my father having passed many years before meant that all her care during and arrangements for after fell on me. I was then getting married 6months after my mother’s passing which again was mainly up to me to plan and then honey moon a few months after that. Add on top of that a very stressful job and I can see how anxiety can sneak in there. But essentially doctor said once I was finished planning and doing all these things, which is when the attack happened, my brain sort of broke. because it had been working overtime at such a high level of anxiety and panic, when there was nothing to be anxious or panic about it didn’t know how to react and so it panicked! Enter my month long panic attack and anxiety that I still deal with. It may sound odd but I think it actually does make quite a bit of sense. Once I stopped fighting this diagnosis the breathing slowly got better.
I also have body dysmorphia which may be another reason this all began in the gym. By the end of that year I had lost so much weight from stress and not eating properly that I felt better in my appearance and now when I put on weight it does bring out my anxiety and I can feel panic seething under the surface. But again, I just have to step back and take a moment and a few deeps breaths ironically and it helps.
I hope you find a reason behind your breathing issue and that it can be handled quickly and easily. All the best

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@katgts

Hello there, after a while and a lot of convincing I had to accept that I had had a panic attack that remained on going at a very low level and anxiety on top of it. I don’t take anything for either and haven’t had an attack since but every now and then anxiety will build up which makes it hard to breathe so I take a moment away from everything and calm down. I never had panic attacks before this or any feeling of anxiety which is why I found it so hard to accept. But one doctor explained it quite well. When this all began, that year I had spent 5 months looking after my mother who had terminal breast cancer and sadly passed. Being the oldest child and my father having passed many years before meant that all her care during and arrangements for after fell on me. I was then getting married 6months after my mother’s passing which again was mainly up to me to plan and then honey moon a few months after that. Add on top of that a very stressful job and I can see how anxiety can sneak in there. But essentially doctor said once I was finished planning and doing all these things, which is when the attack happened, my brain sort of broke. because it had been working overtime at such a high level of anxiety and panic, when there was nothing to be anxious or panic about it didn’t know how to react and so it panicked! Enter my month long panic attack and anxiety that I still deal with. It may sound odd but I think it actually does make quite a bit of sense. Once I stopped fighting this diagnosis the breathing slowly got better.
I also have body dysmorphia which may be another reason this all began in the gym. By the end of that year I had lost so much weight from stress and not eating properly that I felt better in my appearance and now when I put on weight it does bring out my anxiety and I can feel panic seething under the surface. But again, I just have to step back and take a moment and a few deeps breaths ironically and it helps.
I hope you find a reason behind your breathing issue and that it can be handled quickly and easily. All the best

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Hello again!

Thank you so much for taking the time to respond and for sharing your thoughts with me. I often wonder if things happen for a reason, but regardless, all we can do is keep fighting and moving forward.

The past couple of years have been incredibly challenging for me. My brother attempted suicide several times, and during that period, I took on the responsibility of caring for him—taking him to the hospital, buying his medication, and accompanying him to his psychiatrist appointments. Thankfully, he now has a job, a girlfriend, and goals in life.

Just as I began to feel like things were improving, my wife, who was pregnant at the time, developed severe preeclampsia. The doctors warned us that we could lose either her or our baby. Thankfully, I still have both of them in good health today.

It might sound exaggerated, but it didn’t end there. My mother was diagnosed with cirrhosis, which typically shortens life expectancy. However, she has been improving significantly, and it seems her disease is not as aggressive as it is in others.

All of this happened within just two years, and my "air hunger" began during a time when everything in my life seemed to be going well. Your words resonate with something my wife said to me a few months ago: "You've been through a lot, and it's only natural that you would feel the effects."

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@Larrywiemers

gabe
I am 79 and have had a sob for 50 years. A few comments:
1. Worse in fall and spring. Allergies?
2.Lot of mucus. Gerd?
3. Worse when I dwell on it. Mental?

I have had many tests ran and no problems are found. I do have gerd but not much else. I ride my
bike daily along with other exercises and seem to get along ok most of the time. Sleeping with my upper body elevated has helped me the most and that would indicate gerd or allergies. I will go 2 to 3 mos. with no problems and then it will occur again. My symptoms are about exactly the same as yours. I Can live with what I have but always lookin for more answers. thanks.

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Hi @Larrywiemers, thanks for dropping in. Sounds like you've been able to manage the symptoms for quite a long time. I, too, sleep in an upright position when I need to, especially when I have bad allergies. It helps me to breathe easier and rest during the night.

Do you breathe through your nose when you exercise? I find when I control my breathing during exercise and reduce the volume by breathing just through my nose, that seems to help me overall.

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@davidcg

Hi Gabe, I hope you're doing well. I wanted to reach out because I've been dealing with similar shortness of breath issues and was curious about how you're currently managing your condition. Have you found any more definite terms or diagnoses, and have you discovered any lasting solutions or treatments that have made a significant difference? Any insights you could share would be greatly appreciated, as I'm still searching for answers myself.

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Hi @davidcg, I'm glad you found this forum. Sorry that you're going through this breathing issue. Many years ago, I took a breathing class utilizing the Buteyko breathing method. More than a breathing method, it's really a lifestyle change where breathing is the focus, but it teaches various ways to control and reduce breathing volume to get out of the habit of breathing through the mouth slowing the overall breathing rate down. It's helped me greatly. There are many resources if you just Google the Buteyko Breathing Method, but I utilized the instruction taught at learnbuteykoonline.net. Between that and just doing weight lifting and daily walking with nasal breathing, these have helped me manage my symptoms for many years. I also suffer from a chronic sinus inflammation, so if that flares up, so too does my air hunger, but if I can control that as well, which I do with allergy medicines, then the breathing also becomes easier.

One of my bouts of air hunger also occurred while I was at the gym one day; I pushed myself too hard running on the treadmill which induced the air hunger that's remained to some degree to this day. Again, it's well controlled and doesn't bother me a whole lot, but by doing exercises in a controlled manner and controlling my breathing through my nose, this has helped me a great deal.

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Has anyone done a sleep study? It does seem the worse I sleep, the worse my SOB is

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