GFR dropped 5 more points and I don't know why.

Posted by csage1010 (Sue) @csage1010, Sep 22, 2021

HI all, I got some blood work today and I was actually expecting the results to be good, or at least stable. My GFR dropped from 59 to 54 in 2 months. I have lost 20 pounds and my sugars are within normal limits. So sad.

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@windyshores

My eGFR dropped from 50-55 to 36-41 in 6 months. I cite two tests because I drink more water and have a second test each time.

I have never seen a nephrologist and my doc misread the repeat tests of 36 and 41 in one week, to being over longer time and wrote me things were "stable."

I made an appointment with a nephrologist. I have systemic lupus that has never manifested with organ damage, was treated for breast cancer, my blood sugars are somewhat erratic (I am very thin). and I am on Tymlos for osteoporosis, a med that can cause kidney stones from high calcium but does not seem to cause kidney damage. I occasionally take flurpriprofen an NSAID. but very rarely.

The drop is significant and mysterious. I need to ask about my next bone med, Reclast (endo will do 20% dose to start), contrast with imaging, and dose of Paxlovid if needed. And what meds to avoid.

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Hello I just got my blood work back mine dropped from 96.1 to 53.6 in 3 months and the doctors think it is from pain from kidney stones.

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That is a minor drop and it can vary from day to day.
I had a recent egfr that was 75! Shocking as its usually in the 50s
My cystatin c test came back at 39. That is scary to me but i am in very good care and try to let drs do the worrying. Its exhausting.
I am trying to learn about the immune system since mine is always showing there is another thing wrong.
I am trying my best to gain enough knowledge to understand lab reports and medical terminology.
Its a big help to me.
I wish you the very best.

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