I have allodynia with touch. Sitting causes the burning is in my back and buttocks. Waistband and bra cause burning sensation. I have small fiber neuropathy. I take gabapentin. I also use a red light band in the evenings to soothe the burning.
Has anyone tried Magnesium Breakthrough for Allodynia pain? I have tactile allodynia on my back, and take Gabapentin, which (usually) helps to a degree. My niece had restless leg syndrom and reported that Magnesium Breakthough resolved that issue for her. The brand name is Bioptimizers. Just wondering.
I'm replying to my own question - ha ha.
I asked my PCP about dosage of magnesium supplements, and he said that magnesium is not known to affect nerve issues. I'm going to continue to take the Magnesium Breakthrough, as I really stocked up on it, and it's probably just a better form of the supplement.
Has anyone taken Cymbalta (Duloxetine) as an antidepressant and/or to help with neuropathy? Has it helped? I'm grasping at straws, here, as the allodynia on my back is very painful. Gabapentin helps, but does not totally relieve the pain.
Thank you.
It is a soft band with red lights and a timer. I use it for 20 min in the area that is burning. It does not cure the burning sensation but is very soothing for a period of time. I purchased it from Amazon.
I'm really struggling....my skin burns/prickles on my entire upper body and face whether I wear clothes or not... started after an iron infusion, along with other pain (spinal, knee) and neurological issues, hypersensitivities, just 6 months ago. I am in pain all day and struggling but the alloydnia is one of the worst. Laying in bed or resting against a chair makes it worse in my back. Clothing makes it worse. My face constantly prickles. I don't know how to distract or live with this in particular. Lotions/creams etc sting. All I have been offered is Gabapentin, Cymbalta, Amitriptyline or Lyrica. I've tried those meds years ago for headaches with bad side effects. I need some non medication, brain retraining, I guess. I am very distressed, anxious, and depressed. Can anyone recommend anything?
I feel like I am sunburned, but I'm not. My skin hurts all over, even when nothing is touching. For instance, I am wearing a short sleeved t-shirt and my arms hurt. My face hurts. I will see my regular physician this coming Friday. I am hoping she might have some answers. I used to have an occasional bout that would last 24 hours or so. I have now been in this flare for days. It saps all of my energy, and it is much harder to concentrate, even small tasks like pouring a cup of coffee and remembering to put it in the microwave to heat it. And I have sleep deprivation. What I have read so far since I joined this Mayo Clinic site is people have localized pain like this. My pain is all over my body. I rarely have migraines. Has anyone out there found a doctor and medication that helps?
I have sensory neuropathy. No numbness but very sensitive to the touch. It is in my legs and feet. My neurologist prescribed nortriptyline, 20 mg., an old anti-depressant which they found worked for nerve pain. I have been pain free for 5 weeks now. The doctors said "when it works..it works". Meaning it helps some persons. Other it may not help.
I tried Gabapentin and acupuncture. Nortriptyline has been a miracle for me.
I feel like I am sunburned, but I'm not. My skin hurts all over, even when nothing is touching. For instance, I am wearing a short sleeved t-shirt and my arms hurt. My face hurts. I will see my regular physician this coming Friday. I am hoping she might have some answers. I used to have an occasional bout that would last 24 hours or so. I have now been in this flare for days. It saps all of my energy, and it is much harder to concentrate, even small tasks like pouring a cup of coffee and remembering to put it in the microwave to heat it. And I have sleep deprivation. What I have read so far since I joined this Mayo Clinic site is people have localized pain like this. My pain is all over my body. I rarely have migraines. Has anyone out there found a doctor and medication that helps?
I know this is an old post but just seen it and wonder if you ever got a solution? I have exactly the same, sunburn feeling all over my body. I was told IVIg would help but it’s not available for this type of neuropathy in the UK.
Heard of it, been living with it, for well over 20 years. I had an ER doc one time who thought I was bluffing him about how much pain I was in, his nurse distracted me, he poked me with his finger in the back of my thigh and before he could pull his hand away I'd automatically grabbed it, then black out for a few seconds. I came to gripping his hand like a vise to keep him from touching me again. Wise doctor who waited for my brain to come back online and just let go of him. He's one of the few I hold absolutely no grudges against for doing that. But I sure don't let anyone else do it. We women get doctors "testing" us all the time when we have to complain of pain.
It seems as if it gets worse the longer you no touches you, at all. That's just been my experience. So, I instituted a nightly hug from my daughter. Do what you can do, I think maybe it gets worse the longer no one gets to touch you at all. My podiatrist accidentally helped with that as he thought he could just bend my toes and pat my foot while he was talking to me. Overall, I think it's helped me integrate back into the medical community better, this time.
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Can you explain what a "red light band" is, and how it works for you?
Thank you.
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1 ReactionI'm replying to my own question - ha ha.
I asked my PCP about dosage of magnesium supplements, and he said that magnesium is not known to affect nerve issues. I'm going to continue to take the Magnesium Breakthrough, as I really stocked up on it, and it's probably just a better form of the supplement.
Has anyone taken Cymbalta (Duloxetine) as an antidepressant and/or to help with neuropathy? Has it helped? I'm grasping at straws, here, as the allodynia on my back is very painful. Gabapentin helps, but does not totally relieve the pain.
Thank you.
-
Like -
Helpful -
Hug
1 ReactionIt is a soft band with red lights and a timer. I use it for 20 min in the area that is burning. It does not cure the burning sensation but is very soothing for a period of time. I purchased it from Amazon.
I'm really struggling....my skin burns/prickles on my entire upper body and face whether I wear clothes or not... started after an iron infusion, along with other pain (spinal, knee) and neurological issues, hypersensitivities, just 6 months ago. I am in pain all day and struggling but the alloydnia is one of the worst. Laying in bed or resting against a chair makes it worse in my back. Clothing makes it worse. My face constantly prickles. I don't know how to distract or live with this in particular. Lotions/creams etc sting. All I have been offered is Gabapentin, Cymbalta, Amitriptyline or Lyrica. I've tried those meds years ago for headaches with bad side effects. I need some non medication, brain retraining, I guess. I am very distressed, anxious, and depressed. Can anyone recommend anything?
-
Like -
Helpful -
Hug
1 ReactionI have sensory neuropathy. No numbness but very sensitive to the touch. It is in my legs and feet. My neurologist prescribed nortriptyline, 20 mg., an old anti-depressant which they found worked for nerve pain. I have been pain free for 5 weeks now. The doctors said "when it works..it works". Meaning it helps some persons. Other it may not help.
I tried Gabapentin and acupuncture. Nortriptyline has been a miracle for me.
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Helpful -
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3 ReactionsHi Gwen
I know this is an old post but just seen it and wonder if you ever got a solution? I have exactly the same, sunburn feeling all over my body. I was told IVIg would help but it’s not available for this type of neuropathy in the UK.
Heard of it, been living with it, for well over 20 years. I had an ER doc one time who thought I was bluffing him about how much pain I was in, his nurse distracted me, he poked me with his finger in the back of my thigh and before he could pull his hand away I'd automatically grabbed it, then black out for a few seconds. I came to gripping his hand like a vise to keep him from touching me again. Wise doctor who waited for my brain to come back online and just let go of him. He's one of the few I hold absolutely no grudges against for doing that. But I sure don't let anyone else do it. We women get doctors "testing" us all the time when we have to complain of pain.
It seems as if it gets worse the longer you no touches you, at all. That's just been my experience. So, I instituted a nightly hug from my daughter. Do what you can do, I think maybe it gets worse the longer no one gets to touch you at all. My podiatrist accidentally helped with that as he thought he could just bend my toes and pat my foot while he was talking to me. Overall, I think it's helped me integrate back into the medical community better, this time.
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Like -
Helpful -
Hug
2 Reactions