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Bone Marrow Aspiration - Long Term Pain Expecations

Blood Cancers & Disorders | Last Active: Aug 29 11:52am | Replies (45)
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@jamesbaumann

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check for mutations or variants. A CALR type 2 mutation was detected but, fortunately, no JAK2 or MPL mutations.

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Lori, Volunteer Mentor | @loribmt | Aug 29 11:52am

If you’re relatively new to your ET diagnosis you probably have a lot of questions and concerns. Sometimes it helps to be able can talk it through with others who are going through the same thing.
There’s a strong ET support group in Connect with other members who have also been diagnosed with this blood condition where the body makes too many platelets. I’ll post a like below get you started:

~Essential Thrombocythemia: Looking for information and support (with members @nohrt4me @shenriq @janemc @garyintlv @debhammel and others)
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
Other links can be found by typing in Essential Thrombocythemia or ET in the upper search bar!
Don’t hesitate to pop into any conversation with questions or comments! We’re all here to support each other.

What led to your discovery of ET? Was this through a routine physical or were you having symptoms?

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