1. < Blood Cancers & Disorders

Bone Marrow Aspiration - Long Term Pain Expecations

Posted by gmill123 @gmill123, Oct 14, 2020

Hello -

I had a bone marrow aspiration completed for a stem cell banking process about 3.5 months ago now, and I'm still having pain as if it was done yesterday. I've seen a lot of doctors about it and they are all saying pretty much that I just have to wait.

Everything that I saw and read before the procedure said that I would be "normal" within 1-2 days after the procedure, and I'm just so shocked at how wrong all of that is.

Has anybody else had experience with a bone marrow aspiration?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Mentor
Lori, Volunteer Mentor | @loribmt | Aug 28 12:14pm
In reply to @jamesbaumann "I have had one bone marrow aspiration and was pretty nervous going in. I had heard..." + (show)
@jamesbaumann

I have had one bone marrow aspiration and was pretty nervous going in. I had heard the stories. My doctor did her best to reassure me and noted that patients who had them at my hospital reported them going much more smoothly than at others. And, in the end, it went really well. The drugs worked during the process -- felt like a hard tap - and then just sort of felt like a bruise for 1 or 2 days after.

I am only sharing this to say that I was skeptical about the same process being "different" at different places and at different times, but it was. Hopefully everyone here can be as lucky as I was with my experience and I'm sorry for those who were not.

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Hi James, welcome to Connect! Thanks for sharing your positive story about your bone marrow biopsy. Your experience is the way they generally happen; fairly uneventful.
If you don’t mind my asking, what was your doctor concerned about that required a BMBX?

REPLY
1 reply
harley22 | @harley22 | Aug 28 12:42pm
In reply to @jamesbaumann "I have had one bone marrow aspiration and was pretty nervous going in. I had heard..." + (show)
@jamesbaumann

I have had one bone marrow aspiration and was pretty nervous going in. I had heard the stories. My doctor did her best to reassure me and noted that patients who had them at my hospital reported them going much more smoothly than at others. And, in the end, it went really well. The drugs worked during the process -- felt like a hard tap - and then just sort of felt like a bruise for 1 or 2 days after.

I am only sharing this to say that I was skeptical about the same process being "different" at different places and at different times, but it was. Hopefully everyone here can be as lucky as I was with my experience and I'm sorry for those who were not.

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Yes I was really nervous before mine several years ago,but it was literally painless

REPLY
slkanowitz | @slkanowitz | Aug 29 2:54am

Have you tried ibuprofen and Tylenol taken together? Or Naproxen and Tylenol? I am not sure if it will help but think it’s worth a try if you have no contraindications to those meds. A heating pad on low might help as well. Let us know if that gives you any relief please. I hope it does!

REPLY
jamesbaumann | @jamesbaumann | Aug 29 10:29am
In reply to @loribmt "Hi James, welcome to Connect! Thanks for sharing your positive story about your bone marrow biopsy...." + (show)
@loribmt

Hi James, welcome to Connect! Thanks for sharing your positive story about your bone marrow biopsy. Your experience is the way they generally happen; fairly uneventful.
If you don’t mind my asking, what was your doctor concerned about that required a BMBX?

Jump to this post

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check for mutations or variants. A CALR type 2 mutation was detected but, fortunately, no JAK2 or MPL mutations.

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1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Aug 29 11:52am
In reply to @jamesbaumann "I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check..." + (show)
@jamesbaumann

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check for mutations or variants. A CALR type 2 mutation was detected but, fortunately, no JAK2 or MPL mutations.

Jump to this post

If you’re relatively new to your ET diagnosis you probably have a lot of questions and concerns. Sometimes it helps to be able can talk it through with others who are going through the same thing.
There’s a strong ET support group in Connect with other members who have also been diagnosed with this blood condition where the body makes too many platelets. I’ll post a like below get you started:

~Essential Thrombocythemia: Looking for information and support (with members @nohrt4me @shenriq @janemc @garyintlv @debhammel and others)
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
Other links can be found by typing in Essential Thrombocythemia or ET in the upper search bar!
Don’t hesitate to pop into any conversation with questions or comments! We’re all here to support each other.

What led to your discovery of ET? Was this through a routine physical or were you having symptoms?

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