decision whether to get new booster

klf158,
hi, sorry about the long covid. I hope they figure it out and find a cure.
If I had long covid, I would get the vaccine. Not having it should cast some doubt on my answer.
https://www.yalemedicine.org/news/vaccines-long-covid#:~:text=Is%20there%20any%20reason%20why,notice%20any%20change%20at%20all.
I have read that long covid leaves you more vulnerable to new infections. And that the new vaccine could help your immune system fight long covid.
I'll have the vaccine next week at the earliest opportunity. I'm still masking, so one might conclude that I'm obsessive.
https://www.science.org/doi/10.1126/science.adl0867

I would be shocked if my doctor advised me to not get a booster. Was this your primary? All my doctors recommend boosters for me. But, I have type 1 diabetes.

I was diagnosed with Post Covid Syndrome last year. While it was a mild case, I still have symptoms that are attributed to it. I have gotten a booster since then without any problem. I had no ill effects at all.

I have gotten all covid vaccines and boosters with getting no ill effects, except once.

I have read that the booster may help fight long covid, but have no proof of that. I saw no improvement in mind when I got my last booster. But, everyone is different.

It’s a personal decision, but based on my experiences and my doctors’ advice, I will continue to get all recommended boosters. And, flu vaccines, except not at once. I’ll wait a least 2 weeks between them.

I could see how your docs might be reluctant about you getting boosted, as your symptoms seem a lot like a adverse drug reaction. I'm in the same boat, in that getting booster this time is a difficult decision and my docs are on the fence & reluctant to advise me. I have gotten all the previous vacinations as soon as they were available & we are pro-prevention. My wife & I have not yet had Covid that we know about. We avoid crowded inside spaces & mask when we can't. We live in a very rural area. In Feb, I was hit with a severe case of percarditis and hospitalized for 10 days where they took a liter of bloody fluid from my pericardium. The chest pain was horrible. That also caused AFib to AFlutter which they had to do an ablation to convert my heart back into sinus rhythm. They could not find any cause & also I was on a March-Sept CV19 booster schedule being in the high risk group at 72 with a stent, and TAVR. The pericardtis was "not associated" with the boosters, as it would have happened within 4-5 weeks after boosting. The timing was way off.
I'm fully recovered now without any side effects, but it's been a full year since last boosting. I missed the March booster while hospitized.
Bottom line is getting the booster creates a 3 times greater risk of pericarditis. Getting CV19 without vacination creates a 35 times greater risk of pericarditis and adds risk of a severe case of CV19 or Long Covid.
My 3 docs are saying the CV19 cases they are seeing are milder even amoung the higher risk elderly & unvacinated. They are reluctant to make a call in my case. We travel to the city for serious medical problems, so my docs are university professor level. So, it's totally on me to decide one way or the other about boosting. Odds given above, boosting is still less risky, as I can't count on the "milder strain" theory. So being logical, logic dictates getting the new Fall booster, but I can't say I've decided that......yet!
I know what it feels like to be in your spot!

Does anyone suffering from long Covid have experience with Novavax.
I have had severe reactions to my last vaccinations and am considering Novavax this Fall

I appreciate everyone taking time to reply and so sorry for those of you who have also struggled. I have had no improvements in my long covid over the last going on four years and every time I get the vaccine I have a huge setback, so it's not quite as clear cut for me. My doctor is by no means an anti-vaxxer. He is my LC doctor. He's just looking at my specific long covid symptoms and my individual reactions to boosters, which have consistently been quite severe. I know this is a personal decision for all of us and not meaning to stir the pot, but appreciate hearing everyone's experiences and the decision process you go through. I never imagined I would be in a position questioning whether to get an additional booster or update as they are calling them. Vaccines have not helped my LC symptoms at all, but rather have significantly exacerbated them, unfortunately. I have heart issues from covid that have never resolved. Blood issues. Lung issues. Resurgence of past infections, such as Lyme. It has been a nightmare. I wish the vaccines would alleviate some LC symptoms and conditions for me, but that has been far from the case. Wishing you all the best in your respective recoveries!

I did not think that vaccine was authorized any longer in the United States. Otherwise I am not well versed in it. Good luck!

In my case the Myocarditis/Pericarditis risks are similar with past Novavax & mRNA vacinations. Don't know where one could even get the Novavax these days. In FL, it's hard to find Moderna. Pfizer is dominate in this area.

I share the anxiety around another booster and the unpredictable effect it could have on my long COVID status. I tentatively plan to get the booster (whilst masking consistently whenever indoors outside of home), but at the same time, I am taking a few extra weeks to seek it out while I try to boost my B1 level and, ideally, improve my bodyś ability to metabolize the thiamine I take in. I´ve placed my faith in thiamine therapy to bring me gradually back to normal because the emerging literature on B1 and COVID now includes an interest in the possibility that the COVID virus does something to the thiamine metabolism pathway that impairs B1 absorption from diet and/or directly depletes oneś B1 reserve. And since the same literature includes reports of successful uses of thiamine supplementation/repletion in severe acute COVID cases in which symptoms mirrored those associated with chronic B1 deficiency, my instinct to accelerate my B1 supplementation prior to boosting is reinforced. For me, it has taken months for me to arrive at a B1 source that I can process without side-effects or setbacks, and the product that I am therefore upping right now, at an accelerated rate, is TTFD, the synthetic B1 celebrated by the late Dr. Derrick Lonsdale for its superior bioavailability (especially in relation to crossing the blood-brain barrier).

I had not heard about this. Thank you for this information. Best wishes to you!

I need to do something…I masked up, but discovered myself unexpectedly in the local ED yesterday to be with my Dad, who had a spell. He had no respiratory symptoms, but a lot there did. Talk about coughing! Not sure what people had, but it sounded severe. I heard that most of the hospital staff was out with covid. It makes me nervous.