Bone Marrow Aspiration - Long Term Pain Expecations

Posted by gmill123 @gmill123, Oct 14, 2020

Hello -

I had a bone marrow aspiration completed for a stem cell banking process about 3.5 months ago now, and I'm still having pain as if it was done yesterday. I've seen a lot of doctors about it and they are all saying pretty much that I just have to wait.

Everything that I saw and read before the procedure said that I would be "normal" within 1-2 days after the procedure, and I'm just so shocked at how wrong all of that is.

Has anybody else had experience with a bone marrow aspiration?

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Sorry to hear about the pain. I had 2 bone marrow & bone core biopsies before my stem cell transplant 7 years ago. They were both very painful but full recovery in a week or two. I also had two more after thinking it may have comeback and one there was no pain at all. One they had to redo because they couldn’t get thru. I think something went wrong like bone breaking or damaging a nerve. You may have to back off the intense triathlon training for a few months to let the hip bone really heal and see a orthopedic surgeon or even a sports Dr. I am dealing with chronic pain from a stem cell transplant. I healed up okay from 2 crushed vertebrae’s because of the MM but I just accepted I can’t lift as much as I use too but I am getting better at running the water ski course and have slowdown snow skiing.

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Sorry I missed the post about your mri and ultrasound and the comment that you have a tear in the muscle near the injection site and your training may have caused or the Dr. But still cut back on training and see a sports Dr and it could all be coincidental. Like we use to say at ITD if it a’nt broke don’t fix it. Just do maintenance. Oh by the way I found out that when they give you drugs to force your stem cells into your blood stream for harvesting that it is real painful and the headache is tremendous and last for a couple of days and you need morphine to manage the pain. Well keep us posted.

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@robertamoureux

Sorry to hear about the pain. I had 2 bone marrow & bone core biopsies before my stem cell transplant 7 years ago. They were both very painful but full recovery in a week or two. I also had two more after thinking it may have comeback and one there was no pain at all. One they had to redo because they couldn’t get thru. I think something went wrong like bone breaking or damaging a nerve. You may have to back off the intense triathlon training for a few months to let the hip bone really heal and see a orthopedic surgeon or even a sports Dr. I am dealing with chronic pain from a stem cell transplant. I healed up okay from 2 crushed vertebrae’s because of the MM but I just accepted I can’t lift as much as I use too but I am getting better at running the water ski course and have slowdown snow skiing.

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Hi @robertamoureux, did you have a stem cell transplant to treat multiple myeloma?

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Hello,
I had my 2nd bone marrow extraction done on 8/5. I'm still experiencing crippling pain and debilitating nerve pain.
Limited mobility has been the name of the game for many years due to other issues.
I was diagnosed with CLL in July (on my 50th bday). After many more tests, it was discovered that it's a t cell lymphoma and LGL.
The bone marrow extraction was to identify the specifics to determine treatment.
This pain is immobilizing and life altering. I'm currently seeking chiropractic care and desperately looking for any solutions besides the "wait" that the Dr's keep recommending.

Please know that others understand 😔

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@jenepher

Hello,
I had my 2nd bone marrow extraction done on 8/5. I'm still experiencing crippling pain and debilitating nerve pain.
Limited mobility has been the name of the game for many years due to other issues.
I was diagnosed with CLL in July (on my 50th bday). After many more tests, it was discovered that it's a t cell lymphoma and LGL.
The bone marrow extraction was to identify the specifics to determine treatment.
This pain is immobilizing and life altering. I'm currently seeking chiropractic care and desperately looking for any solutions besides the "wait" that the Dr's keep recommending.

Please know that others understand 😔

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Hi @jenepher, Oh my gosh, I’m so sorry that you’re having continual pain after a bone marrow biopsy. Usually there’s just a day to a week of feeling bruised in the area and then things are fine.
Unfortunately, a few people can experience issues with sacroiliac joint pain. So you may be on the right track with your chiropractic care. Hopefully you’ll be able to get some relief!
I found an article from the National Institute of Health that may help explain why some patients feel this continued pain.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7270888/
Did you have any problems after your first bmbx?

Not to bury the lede on your story! I’m guessing being diagnosed with CLL on your 50th birthday wasn’t on the top of your wish list! I developed my first symptoms of AML the day after my 65th…life has its little ironies.
So further tests went on to reveal that you have T-cell lymphoma and Large granular lymphocytic leukemia. What has your oncologist discussed as far as treatment options for you? What types of symtoms were you experiencing?

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So sorry to hear. I just had two biopsies done 2 weeks ago at the same time, because my bone marrow is so dry they can get nothing to test. I have had little or no discomfort and the same was the case when I did my first biopsy 2 years ago. I guess it depends on how it was done and how vulnerable you may be to this kind of intrusion. What do the doctors say? I do hope you can be relieved of that problem, added to what you were experiencing before the biopsy.
Ere

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@jenepher

Hello,
I had my 2nd bone marrow extraction done on 8/5. I'm still experiencing crippling pain and debilitating nerve pain.
Limited mobility has been the name of the game for many years due to other issues.
I was diagnosed with CLL in July (on my 50th bday). After many more tests, it was discovered that it's a t cell lymphoma and LGL.
The bone marrow extraction was to identify the specifics to determine treatment.
This pain is immobilizing and life altering. I'm currently seeking chiropractic care and desperately looking for any solutions besides the "wait" that the Dr's keep recommending.

Please know that others understand 😔

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If you haven't already, I'd consult with my doctor to make sure it's not an infection.
I've had 3 bone marrow biopsies for Multiple Myeloma, the 2nd one did not go smoothly --the nurses were digging around in my bone for 1.5 hours and were unprofessionally rude. But I healed just fine. The spot was sore for a few days when I laid on it.

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@waggsaw

If you haven't already, I'd consult with my doctor to make sure it's not an infection.
I've had 3 bone marrow biopsies for Multiple Myeloma, the 2nd one did not go smoothly --the nurses were digging around in my bone for 1.5 hours and were unprofessionally rude. But I healed just fine. The spot was sore for a few days when I laid on it.

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I hope you filed a complaint with the state licensing board regarding the behavior of the nurses.

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@normahorn

I hope you filed a complaint with the state licensing board regarding the behavior of the nurses.

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I didn't, but I very clearly let my Oncologist know in great detail. He's the head of the cancer center the teaching hospital where I go. He took my comments seriously.

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@waggsaw

I didn't, but I very clearly let my Oncologist know in great detail. He's the head of the cancer center the teaching hospital where I go. He took my comments seriously.

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I have had one bone marrow aspiration and was pretty nervous going in. I had heard the stories. My doctor did her best to reassure me and noted that patients who had them at my hospital reported them going much more smoothly than at others. And, in the end, it went really well. The drugs worked during the process -- felt like a hard tap - and then just sort of felt like a bruise for 1 or 2 days after.

I am only sharing this to say that I was skeptical about the same process being "different" at different places and at different times, but it was. Hopefully everyone here can be as lucky as I was with my experience and I'm sorry for those who were not.

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