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← Return to Grover's Disease: What works to help find relief?
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Grover's Disease: What works to help find relief?
Skin Health | Last Active: 2 days ago | Replies (2020)Comment receiving replies
My dermatologist originally suggested dupixent when the topicals and zyrtec failed to control my GD. I declined dupixent after reading about possible side effects with the drug. I inquired about light therapy but my doctor said I was not a good candidate for it because my skin is very fair and my family has a history of skin cancer. After more misery, my doctor suggested Adbry as an off label treatment for GD. I did a little research as I had never heard of the drug. Fewer side effects reported than Dupixent. I asked mu daughter's dermatologist about Adbry as I hadn't heard of it. That doctor said drug companies don't advertise drugs that work the best because their effectiveness sells themselves.
So, I agreed to try Adbry and I am so glad I did. I had relief within a month. I take 2 injections every other week. I have been on it since Jan 2023 with no more GD flares.
My health insurance denied paying for the drug but my dermatologist applied for me to the drug companies bridge program that gives me 2 years of drugs free of charge. My insurance company finally approved Adbry for me on the 3rd appeal. When the bridge program runs out in Jan 25, my insurance will kick in for it.
Look into Adbry instead of Dupixent.
Replies to "My dermatologist originally suggested dupixent when the topicals and zyrtec failed to control my GD. I..."
I was on Adbry for two years. Loved it…but my lungs didn’t! I didn’t realize at first that it was a side effect. Constant cough frequent colds and finally difficulty breathing to the point where I had to have a lung function test. I thougght I was dying. Now off the Adbry and miserable as ever with my GD which took three months but is now back with a vengeance !!
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I have been taking Dupixent for a year with complete relief and minimal side effects (dry, itchy eyes occasionally). Most people who use it do so successfully, but those who have side effects are more likely to report them in groups like this. If there's one thing we know for sure about Grover's, it's that what works for one doesn't work for another. Please don't discourage a sufferer from trying a medication just because you were afraid to. But thanks for the report on Adbry.