New to group - diagnosis with GPA formally Wegeners

Posted by dukebluegirl21 @dukebluegirl21, Aug 23 12:30pm

Hello I am new to this group and would like to introduce me.
I was diagnosed with GPA (Granulomatosis with Polyangiitis) formally known as Wegeners, July 4th 2022.
I have gone through all treatment options available and have not been successful in stopping the progression of my disease.
I am wondering if there might be other members diagnosed with the same autoimmune disease and what is working for them/what hasn't.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

John, Volunteer Mentor | @johnbishop | Aug 23 3:32pm

Welcome @dukebluegirl21, You are not alone. There is an older discussion with some active members that you might want to scan through to learn what they have shared.
-- GPA granulomatosis with polyangiitis: https://connect.mayoclinic.org/discussion/gpa-granulomatosis-with-polyangitis/

You might also find it helpful to scan through the comments that mention GPA in discussions other than the one above. Here's a link that shows the comments - https://connect.mayoclinic.org/search/comments/?search=GPA

The Vasculitis Foundation has a lot of information on GPA if you haven't already seen it - https://www.vasculitisfoundation.org/education/vasculitis-types/granulomatosis-with-polyangiitis/.

Have you done any research on available clinical trials?

Please sign in or register to post a reply.