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@clayton48

My husband will be 69 in January, he was diagnosised with ALZ three years ago, but I'm sure he was suffering with it for at least two years prior to that. He has always been quiet, but the ALZ has made him more "bold" in his comments and actions. I am younger and have to work fulltime, he does well at home and still just suffers from the short term memory and processing. My biggest hurdle has been his driving. The doctors have all said for 2 years he should not drive. However, when I take that away it takes his independence and pride. I have really struggled with what to do. I did go to one vehicle so when he does drives I'm either in the car or he goes short distances. I know the risks and at this point so does he. He has a friend that takes him places sometimes, but not often and I don't want to impose. He also has other medical problems that require diffirent specialists so I miss a lot of work taking him to those appointments. Any words of wisdom or advice on how to determine when stop his driving altogether or possible safety suggestions?

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Replies to "My husband will be 69 in January, he was diagnosised with ALZ three years ago, but..."

Hi @clayton48 This is indeed a tough issue. It was one of the tougher early issues with my wife's diminished mental capacity. We took her to Mayo and they had an electronic set up for driving testing. It was magnificent. Measured reaction times, signals, etc.

Her results were just slightly under acceptable and her doctor kindly told her she could not longer drive. Period. It saved a lot of anguish and arguing with family members. With my MIL, the family tried to do it all themselves and it took far too long. She came very close to injuring a pedestrian before they finally laid down the law and took the keys.

While the independence issue of driving is undoubtedly a difficult one, sadly it will not be the last nor the worst.

I wish you courage and strength,

I would like to read the advice of others too. My sister is exactly the same. She wants to drive but I am only making excuses to be going where she wants to go and not facing her lack of concentration and slow reflexes.

I found this information on the AAA website about driving and cognitive impairment:
- Driving & Dementia http://seniordriving.aaa.com/understanding-mind-body-changes/mind-cognition/driving-dementia/
- Professional Assessment http://seniordriving.aaa.com/evaluate-your-driving-ability/professional-assessment/

As Scott says, it may be a conversation that your doctor has directly with your husband in Clayton's case or your sister in Sallysue's case. I can imagine your suggesting that they get a clinical driving assessment would not be well accepted. But if their doctor "prescribed" the assessment, it would be more difficult to refute.

Hi IndianaScott:
Thanks for the tip on driving. I will be facing this issue in February and his children do not want him driving; however, they do not live here
and will not see them until April/May when we make a trip to Mayo. Was the test given at Mayo an expensive one? Trying to keep
costs down as we all are with medical, trust you are doing well and will have a good New Year!! OZYS

Hi @ozys Sorry, but I no longer recall the cost of the test. I am really sorry, but it was done as one test among dozens over four days.
Wish I could remember...and wishing you and yours a good New Year as well!

IndianaScott: Thanks so much for your reply, it would probably be worth whatever we have to pay to save some grief for both of us.
ozys.

<br> <br>For months I have been following this chat room.However never had time to respond due to either no time or energy as I adjusted to my husband's diagnosis of Alzheimer's plus spatial dementia. Four years ago he was diagnosed but there was no help from our insurance group. Finally I contacted the VA and received the help we needed.It has been a merry go round as he one day didn't know that I was his wife and began flirting with me and started telling me about his back ground and asking me about mine. Finally decided he loved me but since he was married and hadn't seen his wife in many months, he felt that he was cheating on her. My husband is 80 and we have been married for 56 years.We have a long mirrored wall in our living room and mirrors on the back splash area on the kitchen. It is all one room so the mirrors pick us up on various angles and he thinks there are four or six or even eight of us in the room. Also the sliding closet doors in the two bedrooms are mirrored.Covering the mirrors are not as option so I live with this daily.I have some friends who are my support system. I also have my husband in adult day care two days a week. Our only child lives in California and we live in Honolulu so my support from him is over the phone. He is very helpful and will try to fly to be with us every three months. We just returned from spending Christmas with him and his family and I feel this will be our last flight. My husbsnd just has such a difficult time with the flight even with medication.I want to share how I solved the driving problem with my father who had Alzheimers and refused to stop driving. Watching him drive one day when I was driving a car next to his, I realized his license must be pulled and sent a letter to the department of motor vehicles. By mail they requested he come into the office for testing and he failed. Of couse he wasn't happy and refused to give us his key. I called the local Toyota dealership and it was suggested we have a kill switch installed. It was installed on the lower area of the steering wheel shaft. A special key had to be inserted before the ignition key was inserted  Then the engine would start. Without the special key, the engine would not start. So his key didn't work and we told him there must be a problem with the car. He never saw us insert the special key and our fear of him driving was finished.Toyota didn't do this type of work and suggested a place that installed radios.I hope this info will be of help to someone.Bless all of you who share your burdens. Now I know I am not the only one living in this cloud.

Hello @foxylady42 Nice to e-meet you here! YES indeed you are not alone, although caregiving is a very isolating endeavor! That was one of the most difficult challenges for me. Being a people person cutting off so much human interaction was tough. Still trying to get back into pre-caregiving style, but after 14 years it may be a lost cause 🙂

That is a great suggestion on the driving. Wish I had thought of that! It is quite a problem to overcome and this was a good one.

On the mirror issue, at least on smaller ones, I have seen folks put colored Saran wrap over them to mask the reflections. I did it in our bathroom and it really helped.

I recall when my wife could no long travel, either by air or car. Simply became too stressful and would increase her anxiety far too much.

I wish you strength and courage! Know we fellow caregivers are here!

Bless you foxylady42:
Great suggestion with the license bureau, I was hoping they would call him in to drive and that might still happen, don't know
how Michigan handles these issues just yet. Our journeys are long and lonely at times, but somehow we find the strength
to keep going. I have obtained some help from VA three times a week for two hours and that is a God Send so I can get away
to do shopping and working and etc. You are not alone in your battle and know we are here to listen. Ozys

a2ozys. - What steps did you take to get help from the VA?  My husband is 100% disabled and the VA has offered things to me but never help for taking care of him.  Although I have help that I pay for myself, I am either going to have to have more help or place him in a facility and that thought kills me.  You are right we somehow find the strength to keep going but there are many days I wonder if I can make it.The Redhead