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ET and chemical pre-cautions?

Blood Cancers & Disorders | Last Active: Sep 30 1:00pm | Replies (31)
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@magicgirl

Hi! I haven't been told to stay away from anything like benzine. Are you taking hydroxyurea? It dropped my platelets from 650 to 373 in 4 months. It steadily dropped each month since I started taking in March 2024. Hopefully next blood test will show platelets continue to drop. I may be able to reduce the amount of hydroxyurea I'm taking.
My doctor says it's critical that I get & keep my platelets under 450.

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Replies to "Hi! I haven't been told to stay away from anything like benzine. Are you taking hydroxyurea?..."
mlmk0601 | @mlmk0601 | Aug 22 11:44am

Started taking Hydroxyurea every day in mid March my platelets went down from ~788K to 486K in two months but my reds are low a bit out of range so my hematologist switch me to every other day and I re-test at the end of August. I feel less weak so I’m thinking my reds are up. Hopefully my platelets will drop a bit more and not go up. Fingers crossed

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