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ineffective esophageal motility disorder and electric shock sensation
I've been dealing with swallowing issues for over a year and a half now. They began after a course of beta blockers. After two manometry tests, 3 barium swallows and two endoscopies, i've been diagnosed with ineffective esophageal motility disorder and a sliding hiatal hernia. I also have pretty bad acid reflux. I have trouble eating anything that isn't liquid now. The only solids I can eat are saltine crackers, graham crackers and shortbread cookies, basically anything that's a meltable solid. As part of this issue, i get what feels like random electric shock sensations over my chest. They are quick and usually are a result of how I'm sitting or something I've eaten that's more solid. My heart has been ruled out, so these sensations are coming from the esophagus, i assume. Has anyone experienced this sensation as part of esophageal motility issues or hiatal hernia? Also, just doing another random check-in to see if anyone has ever been successfully treated for esophageal motility disorders. I sure do miss the luxury of solid food. Curious as to what doctors at mayo are good to see about esophageal motility disorders that are not achalasia. Thanks!
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Hi @kaykay729 and welcome to Mayo Clinic Connect. There are several members that have discussed ineffective esophageal motility. You will see that I added you to one of the conversations that is talking about it.
There are also more discussions that I have included below so that you can read them as well.
https://connect.mayoclinic.org/discussion/esophagus-issues/
https://connect.mayoclinic.org/discussion/non-specific-esophageal-motility-disorder-caused-by-beta-blockers/
What did your physician suggest in the meantime? How long did you have symptoms before you were diagnosed?
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2 ReactionsI have been having GI symptoms since last May. The only thing I have now is a bad taste in my throat and when I am hungry it gets worse. It's almost like a gas is coming up from my stomach. I was diagnosed with SIBO back in July but really don't have anybody the symptoms but mild constipation. So he suggested the manometry because of the bad taste. A week later he told me I had ineffective esophageal motility and that there is nothing that can be done.
Hello @kaykay729. Have you considered a second opinion if the diagnosis just doesn't seem right based on your symptoms?
The SIBO diagnosis was found with a boost on the small intestine during an EGD. I don't disagree with that diagnosis but I don't have the symptoms like I read about other people having. Now I am diagnosed with Ineffective Esophageal Motility with the doctor telling me nothing can be done about it. I would like to find other people that have this so I can understand how to eat and maintain caloric intake and in fact if it's true that nothing can be done.
Did you receive the diagnosis at the Mayo Clinic? I have Ineffectual Esophageal Motility as well. Severe spasms that last for hours and told there is nothing they can do for me as I have to learn how to live with it. 3 opinions in NYC. Tried nitroglycerin, channel blockers and domperidone and nothing works for me. I'm asking if you were seen at the Mayo Clinic and they told you there is nothing they can do because I was thinking about making an appointment with them and the cost for air, hotel etc. is high so I want to ensure there is a possibility of help.
Thank you.
I’ve had 3 opinions to find out what is causing my randim chest pains. I also have a recurring hiatal hernia. Thev3rd doc thinks I mifht have esophageal spasms. I need more tests, but he said it could mean surgery, meds, or both. Some people get telief from Alroids mints! Natural peppermint is a natural muscle relaxer. So while I wait for more tests, I am going to keep a tin of altoids by my bed. It can’t hurt. I will be following. Good luck. This is painful and frustrating.
Good luck to you. Hope you find some relief.
HI
it happens to me too. started a year ago, but i have the same sensations. i am taking buspar, prevavicd pepcid and used to have pyridostgimina, now of because it cause me arrithmyas.
Go see Dr. Bowers at Jacksonville Mayo..........Do it!!!!
Nissen fundoplication, I know there is a problem with mine but with Lupus it will remain. I have Barrett's 3 levels in different places. They might have been worse without the Nissen fundoplication??
Slow motility but no sudden drops. Learning what to eat is a process.
I was trying soft fruits but to much sugar for autoimmune has parked me right now.
Food is not my friend.
So many here have such serious issues, I count my gratitudes.