← Return to Introductions: Are you caring for someone with dementia?

Discussion
Comment receiving replies
@kmkm

Hello- I don't get out much and am looking for an online community of caregivers who are at home full-time caring for a parent with Alzheimers. I'd love to swap suggestions and ideas. Is there anyone out there? Thanks.

Jump to this post


Replies to "Hello- I don't get out much and am looking for an online community of caregivers who..."

Hello @michiganstressedlady I am Scott and it is nice to e-meet you here. I am not a medical professional of any kind, but I was the primary caregiver for my wife for 14 years as she battled brain cancer. I am sorry to hear of all the trials and tribulations you are having due to your partner's health.

My MIL also had frontal lobe damage and one of the first things that changed in her was that she also was sexually inappropriate and she took to swearing, which she had never done before. We all made the decision to limit her time and interactions with the youngsters in our families for their own good. In my wife's case her neuro doctor told us when there is brain damage very often prior personality traits are hugely magnified in the patient and this was certainly the case with my wife.

I must say I do not know how you manage a patient with such a higher body size than yours. My wife was smaller than me, but we turned to using a mechanical patient lift, such as a hoyer lift. If you aren't familiar with it, this link talks about their use. http://www.wikihow.com/Use-a-Hoyer-Lift.

Also in my wife's case often times it made no difference what I suggested in her care, but if the doctor told her she needed it she listened and his/her words were LAW. So we most often used the doctor to communicate anything that needed to change.

I would suggest the doctor immediately take steps to tell your partner he cannot self-administer his drugs! Taking a whole bottle of Vicodin and a whole bottle of klonopin seems to me to be beyond dangerous!

Hopefully the doctor can also strongly suggest to him to get his affairs in order. It made a huge difference that my wife was agreeable to do this prior to her passing. Remember if you don't have a will, etc. you actually DO have a will --- the government does it their way no matter what you want or wanted.

Peace, strength, and courage!

Thank you so much @IndianaScott , I appreciate your thoughts and what an amazing person you are to do what you did for your wife! Very admirable . ....being a CNA has made me familiar with lifts , and hoers and such , but I live in a trailer , and room for that type of equipment is very if not impossible to fit in here. He still can maneuver around with walker , and can pivot to get on commode, when he looses his ability to walk idk what I will do ....but that hopefully is later . He also has had all his toes removed on one foot and has broken socket and all tendons in shoulder torn from a fall 2 yrs ago ...which just makes things even more difficult , however I find if he is in the mood to listen to me and if he will follow directions on a specific day , I can do his baths then , or take him out . he isn't driving , he thinks he will again but I do not believe he should , mostly because he wont fit in most cars, and when I drive we have seat belt extensions , and his knees still touch the dash and he takes a toll on my car , .....I can feel the difference when we go up a hill or try to stop ...well it just drives differently then it does with just me ....Idk when he actually got this , but I do know he is completely different then when we met. For some reason sex seems to be his main thought in most things and I have stopped taking care of my grandchildren of which I have 3, ages 9 7 , and 2 ....I used to have them every day after school , and all summer but I now only have them when he is in a good way, and very limited which makes me feel terrible as I am very close to them and have taken them sense they were born ...I will speak with the Dr about him and see if it helps for the Dr to tell him to get his affairs in order and stress how important this is and also about his meds, as I am afraid he will take his whole bottle of Oxy which could be deadly ! ....Thank you so very much for the emotional support you have given me here, all of the special people here !

Only us who live this way understand how much it takes. I will continue to ask God for strength and peace for all of us caregivers, they say much is asked of to whom much has been given. I pray also for endurance so we may continue to care for our cherished loved ones.

<br><br><br><br><br>Amen to that.  Thank you and I shall do the same.<br><br>

I am caring for my husband too! I too would love to get advice and share experiences! Hope to find out I am doing the right things, this is such uncharted territory for us.

I moved in with my mom. I am her only daughter. I have 2 brothers who live out of state.
I have my daughter come in every Sunday for 8 hours so I can go see and be with my husband. He is taking care of our house and pets.
I also have a volunteer come in for 4 hours on Tuesday's so I can go shopping.

Hello new here. I’m caring for my father stage 3 Dementia. My father is 90 I retired early 59 my husband is 69 we have no children but we live in a tri- level house. This is a big concern, I worry at night he might fall down the 7 steps. He has sun downing so he is up about 2 to3 times at night. He is also diabetic. I have been taking care of my dad for only 3 month going on 4 and aleady seems a life time. He also has conjested heart failure so he is on a limited liquid,low sodium and low sugar diet. Also has a diabetic ulcer on his big toe. He is now doing hyperbaric oxygen just had his 3rd treatment but it takes a 3+ hour chunk out of your day. Plus a little longer getting him dressed.
I make his meals from scratch/ very simple but I have lowered his sugar count and I no longer have to give him his shots. Which is great. I do have other siblings but they all work full time.
Yes I would love to talk to anyone else out there too.

Hello, I am also in the position of caring for my husband who has dementia or Alzheimer's and look to this forum to find answers and advise to the many challenges I get on a daily basis. It feels like I am not alone when I read about others experiences. I am not familiar how this works but want to be able to communicate with others like me. I am not computer savvy but am willing to try.

Any advice is good advice for me right now