Bone pain: Can anyone explain what cancer in the bones feels like?

My problem is that I cannot do any of the contrast dyes, and MRI threatens to increase my tinnitus. Have any of you been able to have mets to bone detected without dyes?

I am 10 years out and tend not to be a worrier. But the pain in my hip persists and x-ray only shows "mild degenerative changes." I also have a nodule in the area above where my left breast used to be that is probably a cyst.

I have only message oncology twice in the last 5 years about the hip, both times in the last year, and get referred to PCP for x-ray. I a strong self-advocate but the issue of dyes and kidneys is daunting and holding me back.

I have 7 spinal fractures, spinal cord damage in the neck, and trigeminal/occiptal neuralgia along with all the usual osteoarthritis. Also lupus joint pain and high antibodies for scleroderma with some skin thickening. I am also on bone meds that cause bone pain. How am I ever supposed to know when to push for getting checked?

@windyshores is a PET SCAN something you can tolerate? It’s not as detailed or specific as a normal CT but may help. It uses a radioactive glucose injection. I have tinnitus also but must have regular MRIs of my head to monitor things. Any loud noise only increases the tinnitus temporarily for me. Nothing permanent from the scans. It sounds like you have lots of reasons to have hip pain with the spinal and joint issues. Have you tried physical therapy for this pain?

I had an abdominal CT scan with oral contrast that was iodine (radioactive) and had a terrible reaction.

I just looked up the glucose injection Fluorodeoxyglucose and apparently it is okay for kidneys so I will look into that.

Spinal fractures don't affect hip. The pain at hip is far greater than other places and I expected more severe arthritis there, not "mild." Like I say, I tend not to be a worrier so I have not pushed for scans. I'll take care of the small hard lump first- probably a cyst

I had mild tinnitus and forgot about at an immersive museum musical performance. Tinnitus went way up. I was distressed but have accommodated to it. It does go up and down (leaf blower in next door yard for instance). I am nervous that it will increase permanently again but will of course so an MRI that is absolutely necessary. Neuro wants one of neck but asked if I would change what I was doing knowing results and I said no, no surgery yet, so he cancelled it!

What were your symptoms?

My problem is that I cannot do any of the contrast dyes, and MRI threatens to increase my tinnitus. Have any of you been able to have mets to bone detected without dyes?

I am 10 years out and tend not to be a worrier. But the pain in my hip persists and x-ray only shows "mild degenerative changes." I also have a nodule in the area above where my left breast used to be that is probably a cyst.

I have only message oncology twice in the last 5 years about the hip, both times in the last year, and get referred to PCP for x-ray. I a strong self-advocate but the issue of dyes and kidneys is daunting and holding me back.

I have 7 spinal fractures, spinal cord damage in the neck, and trigeminal/occiptal neuralgia along with all the usual osteoarthritis. Also lupus joint pain and high antibodies for scleroderma with some skin thickening. I am also on bone meds that cause bone pain. How am I ever supposed to know when to push for getting checked?

@windyshores
Words like probably and likely concern me. Did you have that chest nodule biopsied? When I found the recurrent breast cancer on my chest wall it felt much like a marble — hard, immobile, painless, 1.2 cm.

@zebra yes it is a marble, hard, immobile but slightly painful in the area if I press it. I contacted oncology 10 days ago and again last Friday and will try again today. They told me the surgeon's office would call me and to get in touch if they didn't so I got in touch and still nothing. Leaving the portal for old-fashioned phone! Thanks for the encouragement.

Prayers for you.

I'll have an ultrasound in 2 weeks. Not worried. Thinking it's a cyst until it's not!

I'll have an ultrasound in 2 weeks. Not worried. Thinking it's a cyst until it's not!