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Profile picture for sueleerocks @sueleerocks

I am pretty much ignored when I mention all the lasting effects of those medicines, like I’m a hypochondriac. I no longer try to get help either, for help does not exist. Those drugs changed me forever in a negative way, but no one cares and no one wants to hear it. They could never ever understand unless they were to take the drugs for a year, once a week shots, etc. etc. I could go on and on here.

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Replies to "I am pretty much ignored when I mention all the lasting effects of those medicines, like..."

@sueleerocks I hope you’ll see this. I know you’re a stranger, but I care and I’ll listen because I live it. My Dr told me for years that the Interferon/Ribaviron treatment had nothing to do with all of my symptoms. I didn’t believe him, but what could I do? He was a good dr and tried a lot of things to help me. Tested me for many different things. Diagnosed me with Fibromyalgia, Chronic Fatigue, Rheumatoid, depression and more. Fast forward many years. PIS is now a known issue. He tells me this is the problem. But get this- he doesn’t remember ME telling HIM this years ago. Now he is retired and not a single health care professional that I deal with knows about PIS. Luckily my current drs are willing to listen and did a little research to at least understand what I am talking about. I’m more than happy to talk to anybody who deals with this a little more privately (if that is even an option on here?) As you all probably know, this is so long and involved. I also don’t want to give medical advice, just share what I personally have done.