Thank you Reminder to PMR group
Just a reminder to everyone in the PMR group (as well as others). My "79 yr young" husband and I want to thank folks for their insight, care and knowledge in the group discussions. We thank Mayo Clinic Connect for this website and emails and we feel that we are not alone in this journey. This is my husband's second PMR flare and we are seeing a new doctor who is compassionate. He's on a slower taper from 10 now to 7 . With this website and the Lord, we will see this through. God bless you all.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
I am so happy I found this group and am thankful for the support.
There are a couple of PMR groups on Facebook that I've joined, they too are a great source of support. I refer this site to them almost daily.
The more we study and learn, the easier this journey becomes.
It's been 5 years, 3 1/2 with PMR markers. One morning I woke up feeling better than I could remember but it didn't last long. I have found that I have to manage my life and activities even though I am considered over the flare up. Food is still the hill I have to climb and have had to give up sweets entirely, but I still crave them. Disappointing, but every month I feel like am a bit better, although I am also having to deal with health now that I am 80. I guess I can live with that. I'm glad your husband has made it through, and I hope is does well in the future. Keep smiling and hope for the best. Or as my previous country men would say "Keep strong and carry on".
Psi can be debilitating but keeping a positive attitude, great-full for small improvements helps each day. Thank You
Welcome @lindashannonhills, A positive attitude going and taking it one day at a time definitely helps you manage PMR. How long have you been dealing with PMR?
Only four weeks. Will see how I feel after four to five months but have been dealing with other pain related issues for years.
Mine started about 6 weeks ago with pain in the hips and legs, which then spread to the shoulders and arms, especially right wrist. On the 1-10 scale, it often reached 9, especially at night, when the OTC pain medications just didn't seem to work. After several visits to my Dr. and a ton of blood work, he diagnosed PMR. He has referred me to a rheumatologist, but at this point nothing looks very good. Dr. injected 40 mg of Methylprednisolone Succ yesterday, the result of which was that it greatly reduced the pain but made it almost impossible to get any sleep last night. He has prescribed oral prednisone 50 mg. daily, but the pharmacist had a question about it, so I can't get it until the doctor answers his question. I cannot think of anything in my life, physical or otherwise, which prompted PMR. But I'm glad I found this group. I don't know anyone who has every had PMR; but at least I am now in touch with others like myself. God bless you all!
I hope your pharmacy got answer quickly and didn’t withhold your meds. Perhaps she thought 50 was high. Usually start at 25 and taper pretty quickly.
Timing of dose is important. I did 3 am then when I woke up I was pain free mostly. Then that didn’t work and switched to 10 pm. Now that’s is working great. Be flexible. You’ll do fine and best to you.
This has been a very helpful group to me too. Everyone has been very friendly and understanding, and this has driven me to try to help others more by sharing my experiences.
Thank you all for your input. It helps to know we're not alone!
Has anyone taken prednisone 15mg daily also have ulcerative colitis on pentasa 3x day. Now have bouts of diarrhea daily. I thought prednisone would reduce inflammation also making colon better. This is second flare of PMR . I did not have colitis first time. We don't know if prednisone is causing the diarrhea. Any comments?