Lyme Disease and PMR

Thank you John for your comments. Putting this together piece by piece until my appointment with the rheumatologist which is 4 months away!

Great video! Thanks for sharing.

I was treated for Lyme a month ago and then treated for PMR. The prednisone had an immediate beneficial effect. I am about seven weeks into the prednisone and successfully on my first taper 12.5. A recent visit to an orthopedic surgeon resulted in a discovery after testing fluid from the knee that I have Lyme in my knee. I am starting on four more weeks of doxycycline. I suspect that the Lyme triggered the PMR, unbearable pain both sides in groin biceps and neck . The pain went away with the prednisone after several weeks with an immediate significant decrease.

Also possible I never had PMR but the prednisone did get rid of the pain.

That is my story.

I have had Lyme and Babesiosis, now PMR. The tests for both Lyme and PMR are not definitive. Good luck navigating through these. I think all the doctors can do is throw medication at them and hope for the best, lol.

I w as diagnosed with Lyme disease in 2019 was treated and within a year was diagnosed with pmr. I am still struggling with pmr, mostly fatigue at this point. I am on Cymbalta 90 mg and am now down to 2mg prednisone.
Not much pain but great fatigue. I do think the Lyme triggered some process that led to the pmr although my doctor thinks they are very separate diseases.

I have been diagnosed with Lyme Disease 4 times over the past few years and feel that this had weakened my immune system to now have PMR for over 6 years. A lot of symptoms are similar, too, especially the extreme fatigue and pain. It's only a guess but one of those "gut" feelings.

Lucky me, I had cdc verified Lyme disease and PMR and Fibromyalgia. I remember the infected tick bite that took 5 months to clear up in 2004, but didn’t think much about it as I grew up in TN with ticks being normal if you do much outside. I wasn’t diagnosed with Lyme until 2019! My pain started in 2011. Diagnosed with fibromyalgia, but no treatments worked because in 2019 I finally got diagnosed with PMR with fibromyalgia. It’s been a 20 year ride from hades! So yea, I personally believe Lyme can screw up our immune systems which can lead to fibro and/or PMR. A LOT of these patients test positive for Lyme. Wonder how many don’t realize this is a possibility and never get tested as those little buggers tear down their body.

I was tested and treated for Lyme 3 months ago and when the doxycycline had little effect I was diagnosed with PMR and the Prednisone had an immediate effect. Last week fluid in my knee was tested positive for Lyme so I am back on doxycycline for four weeks in addition to my Prednisone. I seem to have both.