Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6, 2024

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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Profile picture for palermo1 @palermo1

I have gastroparesis but mild form, Dr put me on donperidone,and that really helps I was scared to eat when I first got diagnosed, 3 months ago, but now I try different foods, and see how it goes, and most of the time I feel fine, I got something, that helps with nausea, but I have used maybe 3 pills, so diet is key if there's a food that caused trigger don't eat it anymore. Feeding tube is for very severe cases is what my Dr said.

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I was told to take metoproclamide and when researching I see statistics show it causes Parkinson’s so I would not take it. I stopped eating. I’m watching carefully but it started back again now and I’m frightened. need help people.

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Hello, New to the group. I'm trying to find out if anyone can recommend a doctor they saw at Mayo that was an expert in gastroparesis? Thx

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Profile picture for anitannapa @anitannapa

Hello, New to the group. I'm trying to find out if anyone can recommend a doctor they saw at Mayo that was an expert in gastroparesis? Thx

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How did they diagnose it? Because I think that's my problem and they haven't
really checked me out too much except for endoscopy and coloniscopy, and was told it's ibs-d.

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How did they diagnose you? Because I think that that is my problem. But my Doctor has only done an endoscopy and a colanoscopy and diagnosed me with IBS-d.

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Profile picture for papo @papo

How did they diagnose it? Because I think that's my problem and they haven't
really checked me out too much except for endoscopy and coloniscopy, and was told it's ibs-d.

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Delayed Gastric Emptying test

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Profile picture for anitannapa @anitannapa

Delayed Gastric Emptying test

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Hi @papo and @anitannapa, Welcome to Connect. Thanks for sharing how you were diagnosed @anitannapa. I thought I would share a link with more information on the different methods used to do the gastric emptying test. Here's some information I found that describes the test.
-- Gastric Emptying Study: What It Is, Prep, Procedures & ...
https://my.clevelandclinic.org/health/diagnostics/gastric-emptying-study
I'm not sure if it's an option for either of you but Mayo Clinic does have a Motility Clinic. Here's a link - https://www.mayoclinic.org/departments-centers/motility-clinic/overview/ovc-20357787.

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Profile picture for John, Volunteer Mentor @johnbishop

Hi @papo and @anitannapa, Welcome to Connect. Thanks for sharing how you were diagnosed @anitannapa. I thought I would share a link with more information on the different methods used to do the gastric emptying test. Here's some information I found that describes the test.
-- Gastric Emptying Study: What It Is, Prep, Procedures & ...
https://my.clevelandclinic.org/health/diagnostics/gastric-emptying-study
I'm not sure if it's an option for either of you but Mayo Clinic does have a Motility Clinic. Here's a link - https://www.mayoclinic.org/departments-centers/motility-clinic/overview/ovc-20357787.

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Thank you for the information. I'm currently trying to get in for an appointment at Mayo. Since I would be traveling from the West to the East coast, I would prefer to choose my doctor vs being assigned one through the Motility Clinic (if indeed that is how it works). Any suggestions?

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Profile picture for anitannapa @anitannapa

Thank you for the information. I'm currently trying to get in for an appointment at Mayo. Since I would be traveling from the West to the East coast, I would prefer to choose my doctor vs being assigned one through the Motility Clinic (if indeed that is how it works). Any suggestions?

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I think the Motility Clinic works as a multidisciplinary team so I'm not sure if you can make an appointment with a specific doctor unless you get a recommendation from someone and can request an appointment on their bio page. If you go the Motility section for Rochester on this page, it lists the doctors and you can read their bio plus there is a link to request an appointment - https://www.mayoclinic.org/departments-centers/gastroenterology-hepatology-digestive-care/sections/doctors-by-location-and-specialty/gnc-20356421.

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Thank you for the information.

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Profile picture for terree @terree

I was told to take metoproclamide and when researching I see statistics show it causes Parkinson’s so I would not take it. I stopped eating. I’m watching carefully but it started back again now and I’m frightened. need help people.

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Inc reply to terree to @terree I’m newly diagnosed with this condition. My dr decided this after my gallbladder removal and I was still
having no hunger. I am scheduled for a 4-hour study of my gastric movements to try to pinpoint the cause.

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