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Hello @bestpoppi and welcome to Mayo Connect. I see that you have tried Rytary.
As you are new to the Parkinson's discussion group, would you care to share about your history with PD? How long were you diagnosed and what meds were you taking prior to Rytary?
Were you given Rytary to help with off-times?
Replies to "Hello @bestpoppi and welcome to Mayo Connect. I see that you have tried Rytary. As you..."
diagnosed with essential tremor in 2010, and PD in 2015 . I am a retired pharmacist and many drugs were used, but l-dopa help control my tremors in upper body---but not able to help with tremors in my legs. There were 2-3 hours of "off" time --more of a nuisance. My dose 2 tabs 4 times a day of the 250mg.
My doctor thought RYTARY would help. My dose is 2 capsules 4 times a day of the 48.75/195.
I have been on it 2 months and I take it every 4 hours. No more "off" times, but my leg tremors
are not being helped. I couldn't believe the price. Very expensive, and not covered under my health plan.
@herbie87
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I was diagnosed with Parkinson’s in 2017 starting with a trimmer in my right hand. I took the sentiment for about three years due to nausea he started me on Rytary 48.75–1 95 mg taking three pills four times a day in June 2023. I take other medicines and started having trouble. My parkinson doctor at Mayo Cut my dosage to about half 23mg?? One tablet at seven and one at 2 PM so far I have trimers in the evening along with stiffness in my feet in the morning. I’m in stage 1 of Parkinson.
My doctor’s Secretary helped me get Amneal patient assistant program in which the Rytary is sent to me by UPS once every three months Free the phone number for them is 877-764-9021. I hope this helps and answers your questions. Message me here if you have more question.
Good Luck