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Diagnosed with Mycosis fungoides. Don’t understand what to expect?
Blood Cancers & Disorders | Last Active: Oct 29 6:12pm | Replies (20)Comment receiving replies
Shari, how big is your lite box? My husband's derm has talked to him about getting one for our home. It's about 35 miles to our provider and then 35 miles back home. The provider is waiting for her new box to come in but it is taking forever. My husband's skin was really responsive to lite therapy. Since he hasn't been getting any treatment his patches are rapidly spreading. We were concerned as to how much space the home lite box would take up/the bulbs/repairs. Hope you don't mind me asking. Thanks so much.
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Welcome to Connect @aloha2012. It’s encouraging to read that your husband is having such positive results from the light therapy treatments. But I can imagine it gets pretty inconvenient having to travel frequently when you could achieve the same results at home.
I’m just going to tag @shari715 to make sure she gets notified of your post. Hopefully she can give you the information about the light box she has at her house so you can reduce those road trips!
It’s concerning that your husband’s provider is having to wait for their new light box before treatments can continue. Any news about how long that will take?? Is there another dermatology office in your area that could possibly take over the treatments?