1. < Transplants

Wait time pre-transplant?

Posted by lonnecka @lonnecka, Jun 29 12:33pm

Once a person is referred to Mayo by their doctor for a transplant & that person speaks with Mayo on the phone… How long is the estimated wait time for the next step? We’ve been waiting almost 3 weeks since initially speaking to them. I thought they got back to you pretty fast.

Interested in more discussions like this? Go to the Transplants Support Group.

cromme50 | @cromme50 | Aug 8 1:57pm
In reply to @rosemarya "I actually missed a phone response from Mayo 24hr phone line because I have unknown callers..." + (show)
@rosemarya

I actually missed a phone response from Mayo 24hr phone line because I have unknown callers blocked from my phone, and it did not ring. This only happened once, though. (Not bad for 15 years).
Check your blocked calls. Mayo phone calls always reference Mayo Clinic as source of call. You might want to consider unblocking calls during this pre transplant period.

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Actually I have received 2 different calls from Mayo scheduling that did not show Mayo Clinic on caller ID, I am in AZ and they are growing so fast they might not have been able to designate the correct caller ID - it is a good thing to know and as you suggested, unblock calls for a while.

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Mentor
Ginger, Volunteer Mentor | @gingerw | Aug 8 6:50pm
In reply to @margui70 "It takes a while, my husband had all the evaluation tests at the end of July..." + (show)
@margui70

It takes a while, my husband had all the evaluation tests at the end of July and yesterday we received the evaluation committee letter. We were told it will take about 6 months to get the transplant. I wish you all the best ! My advice since all this process is new and stressful to reach out to the Mayo Clinic to make sure your insurance approve the tests, if not just call you insurance.

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@margui70 Welcome to Mayo Clinic Connect!

What solid organ is your husband waiting for, for transplant? Which Mayo Clinic campus will that be at?

Waiting for anything significant can really be stressful. And you never know, the wait time may be shorter than you think! Be prepared with a list of things to pack, people to notify. I'd suggest to do that now while you are not "under the gun" to get to the transplant center!
Ginger

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3 replies
lonnecka | @lonnecka | Aug 8 7:21pm
In reply to @gingerw "@margui70 Welcome to Mayo Clinic Connect! What solid organ is your husband waiting for, for transplant?..." + (show)
@gingerw

@margui70 Welcome to Mayo Clinic Connect!

What solid organ is your husband waiting for, for transplant? Which Mayo Clinic campus will that be at?

Waiting for anything significant can really be stressful. And you never know, the wait time may be shorter than you think! Be prepared with a list of things to pack, people to notify. I'd suggest to do that now while you are not "under the gun" to get to the transplant center!
Ginger

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1

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margui70 | @margui70 | Aug 8 7:22pm
In reply to @gingerw "@margui70 Welcome to Mayo Clinic Connect! What solid organ is your husband waiting for, for transplant?..." + (show)
@gingerw

@margui70 Welcome to Mayo Clinic Connect!

What solid organ is your husband waiting for, for transplant? Which Mayo Clinic campus will that be at?

Waiting for anything significant can really be stressful. And you never know, the wait time may be shorter than you think! Be prepared with a list of things to pack, people to notify. I'd suggest to do that now while you are not "under the gun" to get to the transplant center!
Ginger

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Thank you for your message. My husband needs a liver transplant; he has NASH cirrhosis and was diagnosed in April with HCC. We went for his evaluation to the Mayo Clinic in Jacksonville, FL

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margui70 | @margui70 | Aug 9 9:46am
In reply to @gingerw "@margui70 Welcome to Mayo Clinic Connect! What solid organ is your husband waiting for, for transplant?..." + (show)
@gingerw

@margui70 Welcome to Mayo Clinic Connect!

What solid organ is your husband waiting for, for transplant? Which Mayo Clinic campus will that be at?

Waiting for anything significant can really be stressful. And you never know, the wait time may be shorter than you think! Be prepared with a list of things to pack, people to notify. I'd suggest to do that now while you are not "under the gun" to get to the transplant center!
Ginger

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Ginger: Thanks a lot for your wise advice; it’s really stressful. I have a lot to read and process; I’m so thankful with God to for giving us the opportunity to go to the Mayo Clinic. I’m a breast cancer survivor and my beloved husband was my angel and caregiver during that difficult time. I pray for wisdom, patience and knowledge to be there for him. Many blessings to you and your loved ones !

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margui70 | @margui70 | Aug 9 10:02am
In reply to @yeknich "Mine took about 4 months. I had a Full Liver Transplant. I know some pre-transplant times..." + (show)
@yeknich

Mine took about 4 months. I had a Full Liver Transplant. I know some pre-transplant times can vary depending on which Organ you need.

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When did you have your liver transplant, and what could you advise. This situation is very stressful and I need to support my husband and encourage him. I really wish you the best and appreciate your reply; blessings !

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3 replies
yeknich | @yeknich | Aug 9 10:26am
In reply to @margui70 "When did you have your liver transplant, and what could you advise. This situation is very..." + (show)
@margui70

When did you have your liver transplant, and what could you advise. This situation is very stressful and I need to support my husband and encourage him. I really wish you the best and appreciate your reply; blessings !

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I had mine in 2016 at I.U UNIVERSITY here in Indy. They are top 5 in the Nation doing Transplants. I was in "End Stage Liver Failure " . I got Hep C from an Tattoo that obviously wasn't properly done. I was only 41 years old when I got sick. I have to be honest and tell you it was the hardest , most incredibly painful experience I believe anyone could go through. It took every ounce of strength and the will to live I had. But if I can do it ANYONE CAN. All things are possible.. If you want to reach out to me and let me know what point he is at right now. I would love to help in anyway I can. I don't currently have a phone number but I am on Facebook my name is Corey Michael Yeknich. ✝️💜

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1 reply
yeknich | @yeknich | Aug 9 10:32am
In reply to @margui70 "When did you have your liver transplant, and what could you advise. This situation is very..." + (show)
@margui70

When did you have your liver transplant, and what could you advise. This situation is very stressful and I need to support my husband and encourage him. I really wish you the best and appreciate your reply; blessings !

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Hey its Corey from the message you sent me
Send me a private message to exchange contact info.

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1 reply
jmp1234 | @jmp1234 | Aug 9 4:13pm
In reply to @jmp1234 "You're in good hands there. Even though it was emotionally devastating, I don't question their decision...." + (show)
@jmp1234

You're in good hands there. Even though it was emotionally devastating, I don't question their decision. It was correct according to my research and 8 months of working with the team there. I need more experience with a rare and difficult surgery, which they have at Miami. Your wait should not be long. Good luck.

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Thanks for sharing from your experience, not something that was heard aor 3rd word. I am getting ok with their process, which is a lot like mayo jacksonville. We're all on the same page again. Ty

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 10 1:41pm
In reply to @yeknich "Hey its Corey from the message you sent me Send me a private message to exchange..." + (show)
@yeknich

Hey its Corey from the message you sent me
Send me a private message to exchange contact info.

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Hi @yeknich, for your safety, your personal contact information has been removed as per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We recommend sharing personal contact information using the secure private message function rather than in the public forum.

However, I'd also like to point out the benefit of sharing here in the support group where you all receive support and information from several people and learn from each other.

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