Neuropathy: Anyone found comfortable footwear?

I'm currently receiving chemo treatment, same meds as you have had, in 3 weeks interval. I'm experiencing tingling in hands and feet plus other symptoms. The tingling
is not debilitating. I'm interested how other members deal with it, medication, massage, exercise? How often do you get the bev? Is it the same dosage as when you started chemo treatment? Will it stop if you stop the bev?
I'm wearing Hoka sandals for my short walking exercise.

Charlotte, thank you for writing back. I’ll definitely check out the Hoka sandals. I, too, had only mild tingling after my first time on chemo. But my oncologist warned me that chemo side effects are cumulative. My feet get really painful towards the end of my second round of chemo. Paclitaxel is most likely to cause neuropathy; bevacizumab is least likely. I have not complained (much) to my doctor about this, because I didn’t want her to stop or pause the chemo or lower the dose. Sometimes it gets better several months after stopping chemo, so I’m hoping for that.

At the start of the chemo I have received handouts of of my chemo drugs. It also included a long
list of the common side effects, self care tips and more.
I look at the info often to remind me and avoid panic if somethink new pops up. If I'm in pain, distress or need more info I write my nurse/doc on my patient portal. I usually get a response the same day, for week-ends they have a nurse on call. My nurse suggested Vitamin B-complex for neuropathy symptoms. Some patients have reported benefits to her. I also keep a daily journal, about the meds, BM
visits to the bathroom, appetite, how I'm feeling.....it's helpful for my
doc/nurse appointments.

Painful neuropathy in my feet up to mid-calf was my worst side effect. My cousin who also has pretty severe neuropathy got Hoka sandals. He swears by them. I’ve very poor so $150- for a pair of shoes is beyond my means.

The one thing that I did that has really help is that I bought slippers with memory foam soles and I always wear them at home. I have hard floors, not carpet, and I discovered that I was making it far worse by going barefoot on my hard floors.

I met a woman at our chemo center who told me that she got electromagnetic therapy from a chiropractor here and it worked wonders. I researched it and it sounds like it could be worth a try. The conclusion was mixed because they said that there isn’t a standard of practice being used. I haven’t tried it because of lack of funds. Here’s an article if you’re interested.
https://www.neuropathyreliefmiami.com/en/neuropathy/peripheral-neuropathy-pulsed-electromagnetic-field-therapy-pemf/
Good luck. 🍀 I will have to go through chemo again when my remaining tumors start growing again. Neuropathy and its pain is what worries me the most. I’m going to use far more supplements and ice even better to see if I can not get as much nerve damage the next time.
https://www.neuropathyreliefmiami.com/en/neuropathy/peripheral-neuropathy-pulsed-electromagnetic-field-therapy-pemf/

compare prices for Hoka slides/ sandals also on ebay -

@lathomasmd, footwear is often talked about in the Neuropathy support group. You may be interested in these related discussions
- Does anyone find that a type of shoe helps your foot neuropathy?
https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/
- Will shoe insoles help alleviate discomfort?
https://connect.mayoclinic.org/discussion/will-shoe-insoles-help-alleviate-discomfort/
- If the shoe fits, wear it!
https://connect.mayoclinic.org/discussion/if-the-shoe-fits-wear-it/
See all: https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20and%20shoes

have you found some shoes which will help you with neuropathy? How are you doing? Are you feeling supported? What can I do?

Is the maintenance treatment with bevacizumab a choice of yours? I had the same first line treatment like you
and the oncologist/surgeon recommends I start now with the maintenance treatment for a year- but it's up to me. His argument it would keep the cancer from coming back for longer. The main side effect, which I already have, would be high blood pressure for which I take medicine. The medication does its job-normal blood pressure. Can you share your experience. How are you feeling?

I have neuropathy in both feet and have found a pair of Spenco (now revitalygn) from QVC are the best. They are mules and I don’t know why or how but after a day of work and walking I get home and put them on and they feel 1000% better. They are wonderful and cost around $60.00 come in different colors and patterns

I’m not sure you meant this question for me, but I’ll assume so. My oncologist recommended bevacizumab every three weeks for two years as maintenance therapy. My philosophy on fighting cancer is to take every treatment possible. If it could help me survive longer, I want it. I have high blood pressure, too, but it’s well controlled on losartan. My neuropathy is bothersome, but my biggest problem is fatigue. I’m not sure whether it is residual from the chemo which ended late April, or whether it’s from the bev.
I can’t do anything anymore. In order to cook, I have to sit on a stool. I used to walk for exercise. Can’t anymore. It’s getting depressing. And so hard to accept! A fellow sister in teal recommended a physiatrist and a physical therapist who both specialize in cancer patients. I have appts with both of them soon. I hope they can help.
The first time I went through chemo, I never had any fatigue. I was still working. And walking. And cooking. I was working on my first quilt, for my first grandchild. I haven’t touched it in five months. He’s three months old now.