Neuropathy: Anyone found comfortable footwear?

Posted by lathomasmd @lathomasmd, Aug 1 11:00am

I’ve been through chemo for ovarian cancer twice (carboplatin, paclitaxel, bevacizumab). I am now on maintenance therapy with bevacizumab. The neuropathy in my feet has gotten pretty bad. Walking and standing are painful, as though the soles of my feet were sunburned. I am looking for very soft-soled shoes—actually sandals (since I live in Arizona). If anyone else with neuropathy has found comfortable footwear, or has other recommendations, please let me know. Thank you.🙏

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@jo72

Painful neuropathy in my feet up to mid-calf was my worst side effect. My cousin who also has pretty severe neuropathy got Hoka sandals. He swears by them. I’ve very poor so $150- for a pair of shoes is beyond my means.

The one thing that I did that has really help is that I bought slippers with memory foam soles and I always wear them at home. I have hard floors, not carpet, and I discovered that I was making it far worse by going barefoot on my hard floors.

I met a woman at our chemo center who told me that she got electromagnetic therapy from a chiropractor here and it worked wonders. I researched it and it sounds like it could be worth a try. The conclusion was mixed because they said that there isn’t a standard of practice being used. I haven’t tried it because of lack of funds. Here’s an article if you’re interested.
https://www.neuropathyreliefmiami.com/en/neuropathy/peripheral-neuropathy-pulsed-electromagnetic-field-therapy-pemf/
Good luck. 🍀 I will have to go through chemo again when my remaining tumors start growing again. Neuropathy and its pain is what worries me the most. I’m going to use far more supplements and ice even better to see if I can not get as much nerve damage the next time.
https://www.neuropathyreliefmiami.com/en/neuropathy/peripheral-neuropathy-pulsed-electromagnetic-field-therapy-pemf/

Jump to this post

@jo72 hi I am new to the group and was reading about your situation. I am a Dethylstilbestrol daughter currently in my tenth cancer fight. Neuropathy is awful. I have found that compression, light massage, and heat or cold helps sometimes. My dear friend who is also a doctor gifted me a set of the leg and foot wraps that has the compression, heat, and massage in it. I had planned on purchasing myself one from Postmark. You can break up your payments with a few different options. I have seen them on a few other websites that have payments aas well. They are the catalog shopping places. You might be able to find the shoes that you are looking for on Poshmark as well. Hugs and blessings to you.

REPLY

Good morning,
I am sorry your neuropathy is bad! I have it in my hand and arms but only at night. I cannot imagine having it in my feet. I want to offer two things. I also live in Arizona. I am on my 5th acupuncture treatment, that I started to deal with the neuropathy as described above. I have had MARKED improvement. I also started taking B supplements at the same time. So, could it be a combo? Sure. But if you are able to try acupuncture, I would consider it. (I get my care, including acupuncture at mayo clinic.) Second, I love "Fit Flops" for Arizona. They are a great support and comfortable. Yes, they cost a lot. They are worth it for me. I also have Plantar Fasciitis, and had a recent flair. (I wore my FIT flops religiously) On a whim, I also told my acupuncture provider about the fasciitis last time I went in. ( I was in a flare up since July) She changed the needle placement to account for the pain i was having in my foot. The flare up resolved in 2 days. Best of luck to you!
On another note:
There is also an Arizona group that meets every other month for lunch, just to talk and socialize with Teal sisters. Let me know if you are interested and I can send you information. I have only been once, and there were 8 women there. (it is in Scottsdale)

REPLY
@drrox

@jo72 hi I am new to the group and was reading about your situation. I am a Dethylstilbestrol daughter currently in my tenth cancer fight. Neuropathy is awful. I have found that compression, light massage, and heat or cold helps sometimes. My dear friend who is also a doctor gifted me a set of the leg and foot wraps that has the compression, heat, and massage in it. I had planned on purchasing myself one from Postmark. You can break up your payments with a few different options. I have seen them on a few other websites that have payments aas well. They are the catalog shopping places. You might be able to find the shoes that you are looking for on Poshmark as well. Hugs and blessings to you.

Jump to this post

Your tenth cancer fight? You’re a warrior. You are an Amazon!

REPLY
@lathomasmd

I’m not sure you meant this question for me, but I’ll assume so. My oncologist recommended bevacizumab every three weeks for two years as maintenance therapy. My philosophy on fighting cancer is to take every treatment possible. If it could help me survive longer, I want it. I have high blood pressure, too, but it’s well controlled on losartan. My neuropathy is bothersome, but my biggest problem is fatigue. I’m not sure whether it is residual from the chemo which ended late April, or whether it’s from the bev.
I can’t do anything anymore. In order to cook, I have to sit on a stool. I used to walk for exercise. Can’t anymore. It’s getting depressing. And so hard to accept! A fellow sister in teal recommended a physiatrist and a physical therapist who both specialize in cancer patients. I have appts with both of them soon. I hope they can help.
The first time I went through chemo, I never had any fatigue. I was still working. And walking. And cooking. I was working on my first quilt, for my first grandchild. I haven’t touched it in five months. He’s three months old now.

Jump to this post

Thank you for your reply and sharing your experience. I will start maintenance soon. My last chemo treatment was 45 days ago , in the meantime I had dental work done before I start on the bev, my neuropathy
is still bad, in fingers and toes, my toes feel ice cold some times and prickly when I walk or move them, I also get fatigued easily, not much drive or energy to do anything. The chemo treatment was hard on me, all kinds of side effects.

REPLY
Please sign in or register to post a reply.