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Epstein Barr Nuclear AG AB IGG result of over 600
Infectious Diseases | Last Active: Oct 29 10:35am | Replies (146)Comment receiving replies
I have almost identical symptoms as and test results right down to the fibromyalgia. I was diagnosed with that over 20 years ago although I’m sure I’ve had it a lot longer than that. I’m 68 years old and have other issues also. I refused Lyrica due to already being overweight.
The rheumatologist just said oh yeah you have Mono without any kind of explanation right at the end of visit. I was shocked and walked out without asking any questions. Positive Lupus levels but not enough to say I have lupus. It’s all so overwhelming at my age. I’m not a good sleeper so it’s really hard. My internal clock has been way off for years.
I do have an appointment with an infectious disease specialist so maybe he has some answers.
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Fatigue for 3 or 4 days each month could be a "flare" of an autoimmune disease. I see you said that you had "positive lupus levels but not enough to to say you have lupus". That should be addressed. You may fall into the undifferentiated connective tissue disease diagnosis, for which there are treatments that may stop you from progressing to full on lupus. That's why the Mayo Clinic started me on plaquenil (hydroxychloroquine). When was the last time you revisted your fibromyalgia diagnosis? 20 years ago is a long time and testing / diagnosis criteria / and new autoimmune diseases have since emerged. I would suggest you get a second opinion from a lupus specialist.
Be well ♡ irene