Connect
Pituitary Tumor appointment at Mayo sooner
Our son has been having hormonal issues for 4 yrs. His cortisol is high, LH high, fat around his breasts, arms, back. Brain fog, headaches, vision issues, memory loss, erectile dysfunction, low testosterone, high estradiol & lack of enthusiasm for work and most anything. We just got an MRI and he has a Pituitary tumor . We begged our GP to give him a referral to get the MRI. Nobody wanted to put him on hormones since he was only 26 yrs old when first diagnosed with low testosterone. He works out, does a gluten free diet and keeps gaining weight. Now 4 yrs later he's worse and we now know he has a tumor. (Micro) We see him slipping daily.
We got him an appt. at Mayo Jacksonville but not until August! He is getting worse by the day and we are trying to get him in sooner. He has an amazing job, travels the world but he can hardly work now. Is there anyway we can get into Mayo sooner? Please help!!
Like
Helpful
HugInterested in more discussions like this? Go to the Brain Tumor Support Group.
Connect
@cinderellis, I'm sorry to hear that your son's condition worsens by the day. That must be very alarming for him, you and the whole family. I recommend calling Mayo Clinic's appointment office in Jacksonville to see if he can be seen sooner. If he is able to travel, might there be an appointment sooner at Mayo Clinic in Rochester, MN or Phoenix, AZ?
My best to you and your son. I went over 3 years without getting the treatment needed as I had many of the symptoms of your son. My worst was my vision loss. I was told after numerous appointments it was old age, etc.
When I finally had a MRI the tumor was the size of a small egg. Two years ago the Pituitary tumor was removed, but due to its size I lost vision for the most part in one eye and am taking Hydrocortisone and male hormone gel for the rest of my life. I wish I had known more about the symptom and had vision doctors that were more aware of the possibilities. I
-
Like -
Helpful -
Hug
1 Reaction@peterdom, you may be interested in reanimating this discussion:
- Low Vision: Let's share about coping day to day
https://connect.mayoclinic.org/discussion/low-vision-1/
How is the eyesight in the other eye?
The good news is my vision in the other eye is very good and was not impacted. The field of vision test done earlier this year showed slight improvement in the eye that was affected by the tumor. I take daily walks and have learned to keep focused on my steps, as uneven surfaces are a challenge. In some respects its training myself to walk in a different manner with caution, but learning to adapt.