Hypopharyngeal cancer: Anyone treated with proton radiation?

Posted by lisa_sj99 @lisa_sj99, Aug 26, 2016

My husband diagnosed with hypopharyngeal cancer in late June. He had a tonsillectomy and the right tonsil was removed. He will be ready for radiation and chemo treatment next week. Based on our research, we have decided for him to be treated with Proton Pencil Beam radiation in San Diego. Have anyone has the similar cancer and treated with proton radiation? I heard there are still many side effects (I.e. Dry mouth, swelling, skin irritation and fatigue etc.) with proton treatment. What do you use to alleviate the side effects? Thanks!

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It's great that you are looking after yourselves so well. I take a multi-vitamin every day because I can't eat much fresh food, only soft cooked foods so I'm scared I don't get enough of everything. (I could drink spinach smoothies but ... ugh.)
The local hospital dietitian said that New Zealand soil is low in selenium, so I figure that the multi-vitamin will cover that as well. She did assert that some vitamins can interfere with treatment but I would have to look up my notes to check that.

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@loli

Hi,
I take a 5000 daily for vitamin D, though I skip it on weekends. I also do oils, and I am wondering what brand of Frankincense do you use. I understand that anything natural that prevents inflammation is good for us. Keep me posted on your progress!

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Hi,
I was taking 50,000. units two months ago. Now two Swanson Vitamin D-3 2,000IU
I put several drops of food grade Frankincense in a bottle of Deerpark water.
At one time I put a cotton ball with Frankincense on the affected area, that
was to strong, but I was desperate to make sure the "C" didn't come back.
I have been eating the cottage cheese/flax oil Budwig diet since last March.
I was taking Vitamin B 17 which one has to limit, it can be dangerous, and only someone
with cancer would be taking this, or eating the Apricot (5 bitter kernels ground up)
I would like to use other oils in a diffuser.
I am taking Vitamin K-2 100mcg., L Selenium 100mcg mineral supplement by Swanson.
A friend purchased a bottle of "BioRepair" which I have taken for three days.
I also take a multi vitamin.
I am now taking 2 Turmeric 720 mg a day.
I put Turmeric powder mixed with mint mix oil on the area that is painful to sleep at night
and hope it will take down the inflamation.
The amount of pain has somewhat to do with what I am eating. The salvia in that area is thick
at times and it is best when I stay away from cheese and sugar. Best when I make smoothie
with organic celery, cucumber and apple. I think I have allergy to ginger.
At times I am overwhelmed because I am not the same, it is difficult to talk to understand.
I am an extrovert at this age and this condition. I went to church today and found a younger
doctor has fast growing cancer. He sat a few isles up with his oxygen. Made me think
about my response to all of this.
What type of oils are you using?

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@alpaca

It's great that you are looking after yourselves so well. I take a multi-vitamin every day because I can't eat much fresh food, only soft cooked foods so I'm scared I don't get enough of everything. (I could drink spinach smoothies but ... ugh.)
The local hospital dietitian said that New Zealand soil is low in selenium, so I figure that the multi-vitamin will cover that as well. She did assert that some vitamins can interfere with treatment but I would have to look up my notes to check that.

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Some smoothies are really good and when I think of the surgery and what I have to deal with
now, it taste even better. Can make some like milk shakes. I purchased a smoothie machine
cheap at Wal Mart for $15.00. reg. price. Wal Mart guarantee's or they replace.

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Yep, smoothies can taste nice, even the very healthy ones! Must look up those smoothie recipes.

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@alpaca

It's great that you are looking after yourselves so well. I take a multi-vitamin every day because I can't eat much fresh food, only soft cooked foods so I'm scared I don't get enough of everything. (I could drink spinach smoothies but ... ugh.)
The local hospital dietitian said that New Zealand soil is low in selenium, so I figure that the multi-vitamin will cover that as well. She did assert that some vitamins can interfere with treatment but I would have to look up my notes to check that.

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loli had a healthy smoothie for our situation. organic celery, apple(couldn't do the lemon) ginger and
...........? I will have to check back what other ingredients. loli posted it.

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Ginger can be to piquant for your condition, so try fresh turmeric instead. You can add spinach or kale.

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I am making a smoothie Organic celery, apple, cucumber and kale. I use powder turmeric mix in mint oil base on the affected area
for inflamation at bedtime. Thanks for the good info.

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@elizabethbryant

I never smoked drank and don't have HPV which would have been good I understand as it is a virus. I did not have the radiation after surgery removing
the stage one superficial cancer. As of a week ago the ENT at UVA said the pain is coming from the Lichone planus. The biopsies show
severe dysplasia. which is pre cancer. I looked up Dr. Hinni at Mayo and he has mixed reviews.
I have been drinking drops of food grade Frankcense (John Hopkins alternative medicine, a few, drops in DeerPark water. High in MZH. It can't hurt.
The Budwig diet is sort of a milk shake but is a cancer protocol. I changed my diet completly. The surgery was awful. The Pet scan nurse told me
as she put the IV in for the Pet Scan to locate the cancer, this is sugar and some radiation and it will carry it show us the cancer. Cancer grows on sugar.

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I agree that reducing sugar in one's diet is healthy. However, according to this article from Mayo Clinic (http://mayocl.in/1AYw0Uw) sugar does not make cancer cells grow. Here is an excerpt:

- Myth: People with cancer shouldn't eat sugar, since it can cause cancer to grow faster.
- Fact: Sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't speed their growth. Likewise, depriving cancer cells of sugar doesn't slow their growth.

This misconception may be based in part on a misunderstanding of positron emission tomography (PET) scans, which use a small amount of radioactive tracer — typically a form of glucose. All tissues in your body absorb some of this tracer, but tissues that are using more energy — including cancer cells — absorb greater amounts. For this reason, some people have concluded that cancer cells grow faster on sugar. But this isn't true.

However, there is some evidence that consuming large amounts of sugar is associated with an increased risk of certain cancers, including esophageal cancer. It can also lead to weight gain and increase the risk of obesity and diabetes, which may increase the risk of cancer.

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Interestingly, I found the Mayo Clinic article by way of our New Zealand friends on the website of the Head and Neck Cancer Survivors' Support Network. You can read more in the article "Debunking cancer myths" http://www.headandneck.network/news/debunking-cancer-myths. Thank you for pointing me in this direction, @alpaca.

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Thank you for the invaluable information about sugar.

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You are very welcome. I'm glad Colleen linked you to the information.

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