1. < Brain & Nervous System

Parkinsonism

Posted by mvanstem @mvanstem, Feb 6 9:31pm

Anyone else diagnosed with Parkinsonism (advanced testing) but no diagnosis of Parkinson’s, nor MSA, nor PSP nor Lewy Bodies. Like to talk? Curious about other routes Parkinsonism can take

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 5 4:47pm
In reply to @anitaxblack339 "I am next week" + (show)
@anitaxblack339

I am next week

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I hope you are able to get some good information on what is causing the problem. Will you post again and let me know how you are doing?

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 6 8:33am
In reply to @jord "Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good..." + (show)
@jord

Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good for tremors.

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So true, @jord. Exercise combined with medication is the best way to avoid disability when it comes to any type of Parkinson's. I start the day with YouTube videos. The first one is a seated Yoga video, it only lasts for about 15 minutes. Then I move on to another video with more stretching and movement for the lower body.

What type of exercises do you find helpful?

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anitaxblack339 | @anitaxblack339 | Aug 6 1:07pm
In reply to @hopeful33250 "I appreciate the information you provided about your Cerebellar Ataxia and Parkinson's diagnoses, @foundryrat743. As you..." + (show)
@hopeful33250

I appreciate the information you provided about your Cerebellar Ataxia and Parkinson's diagnoses, @foundryrat743. As you said that you've been taking Carbidopa/Levodopa for seven years, I'm wondering what your most difficult symptoms are right now. Is walking or balance a problem for you?

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Been taking for 2 years

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 6 1:33pm
In reply to @anitaxblack339 "Been taking for 2 years" + (show)
@anitaxblack339

Been taking for 2 years

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Hello @anitaxblack339

You said you have been "taking for 2 years" but I'm not sure what you've been taking. Is it a medication? If so, has it helped you?

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1 reply
anitaxblack339 | @anitaxblack339 | Aug 6 4:04pm
In reply to @hopeful33250 "Hello @anitaxblack339 You said you have been "taking for 2 years" but I'm not sure what..." + (show)
@hopeful33250

Hello @anitaxblack339

You said you have been "taking for 2 years" but I'm not sure what you've been taking. Is it a medication? If so, has it helped you?

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The levadopacardidopa

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anitaxblack339 | @anitaxblack339 | Aug 6 4:08pm
In reply to @jord "Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good..." + (show)
@jord

Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good for tremors.

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That’s interesting. I may try it.

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anitaxblack339 | @anitaxblack339 | Aug 6 4:13pm

Sac no it was a long time ago, but thank you for the condolences anyway

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anitaxblack339 | @anitaxblack339 | Aug 6 5:13pm
In reply to @hopeful33250 "I hope you are able to get some good information on what is causing the problem...." + (show)
@hopeful33250

I hope you are able to get some good information on what is causing the problem. Will you post again and let me know how you are doing?

Jump to this post

Yes

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anitaxblack339 | @anitaxblack339 | Aug 6 6:11pm
In reply to @hopeful33250 "I'm so glad that PT helped you! I try to engage in regular exercise at least..." + (show)
@hopeful33250

I'm so glad that PT helped you! I try to engage in regular exercise at least four times a week and also walk when the weather is good. I've found some exercise videos on YouTube which are at no charge and really help. There are many chair exercise videos for seniors on YouTube.

You also mentioned, "neuroplasticity exercises" @foundryrat743. Could you explain a little about what that is? Many of our members would be interested in learning about that.

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Glad to know all is well

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anitaxblack339 | @anitaxblack339 | Aug 6 6:11pm

Glad to know physical therapy is helping

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