Meniere disease and a lazy heartbeat

Posted by mari42 @mari42, Jul 27 7:03am

I suffer from Meniere disease and a lazy heart. I have been told I need a pacemaker. I hesitate because with my condition I fall often and am afraid of falling on the side of pacemaker.
Have you experienced this ?

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Have they ever thought about putting in a Payless pacemaker it's called a paceless pacemaker they put it through your right vein of your leg and it's in your right chamber or your left chamber of your heart and it's called a faceless pacemaker so if you only fall once in a while it'll catch the offbeat heart rate and they can set it for what you need. Asked him about that and check into that Minor's disease is with the ear I do believe I know that. Do they have physical therapy or therapist at desert paper minors disease to for the ear 👂 in to teach you ⚖️ and teach you how to fall or how to prevent falling you might want to look into doing physical therapy would a person that does stuff with the ears 👂👂

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@crazykbl

Have they ever thought about putting in a Payless pacemaker it's called a paceless pacemaker they put it through your right vein of your leg and it's in your right chamber or your left chamber of your heart and it's called a faceless pacemaker so if you only fall once in a while it'll catch the offbeat heart rate and they can set it for what you need. Asked him about that and check into that Minor's disease is with the ear I do believe I know that. Do they have physical therapy or therapist at desert paper minors disease to for the ear 👂 in to teach you ⚖️ and teach you how to fall or how to prevent falling you might want to look into doing physical therapy would a person that does stuff with the ears 👂👂

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Thank you for both suggestions.
I could ask a physiotherapist to teach me how to fall ; the problem with Ménière are the occurrence of drop attacks: it is as if you were pushed suddenly and violently to the ground by a truck from the back. You don’t have the time to think and prepare for your fall.

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It must be very disturbing and frightening. I hope you get some relief.

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@gloaming

It must be very disturbing and frightening. I hope you get some relief.

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Yes it is. Thank you for your support. Actually I was hoping to hear from patients who suffer from the same disease but at present on Mayo Clinic site I have not.
Physicians don’t know much about this disease and I have learned more from friends who share their experiences.
What’s sad is the fact that Ménière now strikes younger and younger people.

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I just read up on this, and it reminded me that I had severe vertigo about 12 years ago. I investigated and the internet gave me suggestions on how to get out of bed to not make worse. I was not slammed to the ground when standing but when in bed. It was as if I had someone jerk me and flip me over violently. I was then dizzy and think I would pass out for a second. Then when getting up it was like I was drunk only I never drink.

I went to my chiropractor for another problem which he fixed, and then mentioned my vertigo etc. He replied - Well, why didn't you call me? I told him I had no idea he could help.

Now I understand many people think chiros are quacks and I am sure there are some. But the first one I went to I was unable to turn my head in any direction more than an inch in any direction. Determined it was from auto accident a year prior and got to that condition very slowly. The chiro I went to uses a Gonstead method which is considered the elite. There are usually only one or two in each state in US. I used the first in Tulsa and the second after moving to Florida. The one in Florida I would go to for one problem and 2 more would disappear.

They do make you get xrays before treating you the first time, but they know what they are doing. I believe this last one I used would very possibly get rid of your problem. A Gonstead chiropractor. He had people from all over the world go to him and he had looseleaf books full of usually handwritten testimonies of how he helped them. Got rid of my vertigo. I could barely walk across the room.

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@lindy9

I just read up on this, and it reminded me that I had severe vertigo about 12 years ago. I investigated and the internet gave me suggestions on how to get out of bed to not make worse. I was not slammed to the ground when standing but when in bed. It was as if I had someone jerk me and flip me over violently. I was then dizzy and think I would pass out for a second. Then when getting up it was like I was drunk only I never drink.

I went to my chiropractor for another problem which he fixed, and then mentioned my vertigo etc. He replied - Well, why didn't you call me? I told him I had no idea he could help.

Now I understand many people think chiros are quacks and I am sure there are some. But the first one I went to I was unable to turn my head in any direction more than an inch in any direction. Determined it was from auto accident a year prior and got to that condition very slowly. The chiro I went to uses a Gonstead method which is considered the elite. There are usually only one or two in each state in US. I used the first in Tulsa and the second after moving to Florida. The one in Florida I would go to for one problem and 2 more would disappear.

They do make you get xrays before treating you the first time, but they know what they are doing. I believe this last one I used would very possibly get rid of your problem. A Gonstead chiropractor. He had people from all over the world go to him and he had looseleaf books full of usually handwritten testimonies of how he helped them. Got rid of my vertigo. I could barely walk across the room.

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Thank you very much for taking the time to relate what happened to you so long ago.
I am not familiar with this practice in the States but while posted in Europe, I was in the hands of a very competent osteopath who seems to have been trained like your chiropractor. At the time I suffered from severe migraines and had suffered for more than 25 years.
He cured me in six months by realigning slowly my skeleton: when I was 15, I had a horrible ski accident which damaged cervical vertebrae and shifted my pelvis but not a single physician realized that. They just gave me stronger and stronger medicine.
I am currently seeing an osteopath to double check that my disease called Ménière, is not also caused by the old accident.

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@mari42

Thank you very much for taking the time to relate what happened to you so long ago.
I am not familiar with this practice in the States but while posted in Europe, I was in the hands of a very competent osteopath who seems to have been trained like your chiropractor. At the time I suffered from severe migraines and had suffered for more than 25 years.
He cured me in six months by realigning slowly my skeleton: when I was 15, I had a horrible ski accident which damaged cervical vertebrae and shifted my pelvis but not a single physician realized that. They just gave me stronger and stronger medicine.
I am currently seeing an osteopath to double check that my disease called Ménière, is not also caused by the old accident.

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Whether you present problem was caused by the accident or not, I am thinking perhaps had a slippage or something else caused it to do so, and quite possibly fixed.

From what I am reading, a lot of so-called diseases are called that to make sound more complicated than they are. For example, a lady I responded to was told she had a disease, cannot remember the name, and it was simply low potassium.

I think most doctors do not believe that problems with spine etc can actually be fixed by a chiro or manipulation, and they do horrible surgeries and put pins in etc. I know people this happened to, and they were in so much pain still that had to take meds and were hooked on them or had to take because in so much pain. Once those pins etc are put in, you cannot get fixed by manipulation.

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@lindy9

Whether you present problem was caused by the accident or not, I am thinking perhaps had a slippage or something else caused it to do so, and quite possibly fixed.

From what I am reading, a lot of so-called diseases are called that to make sound more complicated than they are. For example, a lady I responded to was told she had a disease, cannot remember the name, and it was simply low potassium.

I think most doctors do not believe that problems with spine etc can actually be fixed by a chiro or manipulation, and they do horrible surgeries and put pins in etc. I know people this happened to, and they were in so much pain still that had to take meds and were hooked on them or had to take because in so much pain. Once those pins etc are put in, you cannot get fixed by manipulation.

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Thank you for being so open about your experiences.

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I was recently diagnosed with Meniere's disease. I have had tinnitus with some hearing loss for about 2 years and wear a hearing aid for the tinnitus (caused from medication). However, I have had vertigo, nausea, etc. A surprise happened when I went to the ENT last week and did a hearing test. I had thought that my hearing had improved a bit, and had noticed less tinnitus, though still had vertigo and nausea. I was told that my hearing had actually improved! Yes, I had been decreasing the medication (steroid dependent asthma). The ENT told me that is was Meniere's, and not a neurological problem - if not my hearing would not have improved. Hearing can get better or worse with Meniere's. While there is little that can be done, I was told a low sodium diet (which I do anyway), drinking lots of fluids (which I do), and taking a diuretic (which I do), can all improve the Meniere's. He said I could take a medication for the vertigo - but it does not prevent it - just makes it go away quicker.
I hope this info is helpful. I will ask my chiropractor about Meniere's, as I have significant left neck pain - same side as the ear issue. Maybe they are related and he can help with that, not just the neck pain. Good luck and hope some of this information is helpful.

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@pht1123

I was recently diagnosed with Meniere's disease. I have had tinnitus with some hearing loss for about 2 years and wear a hearing aid for the tinnitus (caused from medication). However, I have had vertigo, nausea, etc. A surprise happened when I went to the ENT last week and did a hearing test. I had thought that my hearing had improved a bit, and had noticed less tinnitus, though still had vertigo and nausea. I was told that my hearing had actually improved! Yes, I had been decreasing the medication (steroid dependent asthma). The ENT told me that is was Meniere's, and not a neurological problem - if not my hearing would not have improved. Hearing can get better or worse with Meniere's. While there is little that can be done, I was told a low sodium diet (which I do anyway), drinking lots of fluids (which I do), and taking a diuretic (which I do), can all improve the Meniere's. He said I could take a medication for the vertigo - but it does not prevent it - just makes it go away quicker.
I hope this info is helpful. I will ask my chiropractor about Meniere's, as I have significant left neck pain - same side as the ear issue. Maybe they are related and he can help with that, not just the neck pain. Good luck and hope some of this information is helpful.

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I am glad to hear from you. Thank you. I have had Ménière for 2 years now and just like you my hearing has been improving while my tinnitus has diminished as I wear a hearing aid and my rotational vertigo has almost disappeared; but as soon as the vertigo or drop attacks reappear, it diminishes.
This fluctuation is typical of Ménière. Are you tired ? I feel almost constantly tired and I am told it is the disease itself that tires you and for me the high dose of medication - I take 96 mg of betahistin per day -. When the vertigo or a drop attack start, I have a pill to stop it. It is quite an improvement as I used to have them for hours and be exhausted.
Do you know other patients who suffer from Ménière ? And are you aware of medical schools where there is research being done on this syndrome ?

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