Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Has anyone tried the Calmare therapy treatments. This is done at a neurologist's office and not covered by insurance. I am thinking about trying it. It's a big tens unit that is suppose to take pain signals awy from your body.

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@cgs

Contact Loma Linda medical neuropathy clinic free video call they have testing and treatment with 90% improvement/ results
I'm going God willing.

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What do they do at this clinic?

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@debbiehirsch

Has anyone tried the Calmare therapy treatments. This is done at a neurologist's office and not covered by insurance. I am thinking about trying it. It's a big tens unit that is suppose to take pain signals awy from your body.

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Welcome @debbiehirsch, There are several discussions and quite a few members who have shared their experience with Calmare therapy. Here's a link to the discussions and comments if you want to scan through them - https://connect.mayoclinic.org/search/discussions/?search=Calmare%20therapy.

Have you been diagnosed with neuropathy?

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@johnbishop

Welcome @debbiehirsch, There are several discussions and quite a few members who have shared their experience with Calmare therapy. Here's a link to the discussions and comments if you want to scan through them - https://connect.mayoclinic.org/search/discussions/?search=Calmare%20therapy.

Have you been diagnosed with neuropathy?

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I have been diagnosed with neuropathy on my legs, feet, and hands. I’m on medication but still in pain. I have tried many treatments but they have not helped so I’m looking for other options.

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Is anyone familiar with Pronerve6 for relief from neuropathy? If so, what were your results?

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@apex

Is anyone familiar with Pronerve6 for relief from neuropathy? If so, what were your results?

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Welcome @apex, There is another discussion on the product that you might want to view here - ProNerve6: https://connect.mayoclinic.org/discussion/pronerve6/. There are also many different discussions on what helps neuropathy that you might want to scan through. Here's a link that lists discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=what%20helps%20small%20fiber%20neuropathy.

Another great source of information if you haven't already discovered it, is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.

Have you been diagnosed with neuropathy? Do you mind sharing a little more about your diagnosis and treatments?

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@apex

Is anyone familiar with Pronerve6 for relief from neuropathy? If so, what were your results?

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Here is an earlier discussion about it.
https://connect.mayoclinic.org/discussion/pronerve6/
Here are some "SCAM" signs:
Quantities of the specific ingredients, it is impossible to tell what you are buying.
Every link leads to a glowing review - that's just not possible in the real world.
Most of the product is sold "exclusively through their website"
Their products on Amazon & Walmart do not include a true list of the advertised ingredients
There are no research studies or independent reviews

I would call the a 5 on the Scam Alert scale.

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@sueinmn

Here is an earlier discussion about it.
https://connect.mayoclinic.org/discussion/pronerve6/
Here are some "SCAM" signs:
Quantities of the specific ingredients, it is impossible to tell what you are buying.
Every link leads to a glowing review - that's just not possible in the real world.
Most of the product is sold "exclusively through their website"
Their products on Amazon & Walmart do not include a true list of the advertised ingredients
There are no research studies or independent reviews

I would call the a 5 on the Scam Alert scale.

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Thank you for your reply. Based on it, and my further searches, I've skipped buying any of the products. There's a wealth of information on this site and I think I'll stay with that.

Thanks for your response!

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@apexapril
There is no cure for neuropathy yet new treatments/cures are constantly coming on to the market. I would think that alone would be a clue.
I accept neuropathy for what it is an incurable illness and refuse to waste a bunch of money on products that probably won't work anyway. Sometimes you just have to accept things as they are. I have messaged people who take all sorts of vitamins and minerals, and whatever else and asked them if they helped and few reply positively. Good luck to you.
Take care,
Leonard

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@jakedduck1

@apexapril
There is no cure for neuropathy yet new treatments/cures are constantly coming on to the market. I would think that alone would be a clue.
I accept neuropathy for what it is an incurable illness and refuse to waste a bunch of money on products that probably won't work anyway. Sometimes you just have to accept things as they are. I have messaged people who take all sorts of vitamins and minerals, and whatever else and asked them if they helped and few reply positively. Good luck to you.
Take care,
Leonard

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Thank you for your post Leonard. I incurred the neuropathy after three bouts of Covid and broken ankle. My right ankle, my hands, and lower back are constantly on fire to the point of having very little feeling and constant pain.

I currently take morphine every day, and it helps somewhat, but I hate the addiction. Fortunately, I'm 76 and will probably die fairly soon, and I'll be shut of the whole mess.

Again, thanks for your thoughts!

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