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Interested in how other caregivers survive

Caregivers | Last Active: Jan 19 11:46am | Replies (130)

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@celia16

Progression of symptoms can be unpredictable and fluctuating. The feasibility of in home care by a family member varies. I know my parent’s situation is stressful. The physical and mental toll on 24/7 caregivers is not sustainable. It would be like hiring a caregiver to provide hands on care and expecting them to work 24/7 indefinitely. Getting outside help is crucial. It’s not that easy though. It’s expensive. I’m trying to arrange it now. It’s just heartbreaking for family members to live this way indefinitely. As someone stated upthread, they call it the long goodbye.

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Replies to "Progression of symptoms can be unpredictable and fluctuating. The feasibility of in home care by a..."

@celia16

I am in the same boat. (I have not read all this thread yet, so my experience may be out of place.) My father has lived with us for the four years since my mother died. Has weathered many serious health issues! It is frustrating for him to have so many functional limitations (failing eyesight, mobility, etc). He has not been diagnosed with any form of dementia, however. But his care needs mount, despite his efforts at independence (and the things he still does for himself can be surprising). But my husband and I are at the place where we need to secure some in home help. My father is extremely resistant to the idea, and we tabled it last summer and gave up vacation (for numerous reasons it isn’t a situation where he would be able to go with us at this point, so until last summer we haven’t even tried to get away). But it has gotten to the point where we really need to have some help—for ourselves and for his benefit as well! This was “brought home” to me when I contracted COVID for the first time last fall, but still needed to care for him (meds, food, cleaning, laundry, etc)—double masked and gloved and then back to isolation. Thankfully he did not catch it—but it would be so much better for him if we had had some back up!). It IS expensive! I hope you are able to get everything arranged and it goes smoothly!