Connect
← Return to Endometrial stromal sarcoma (ESS): What treatment did you get?
Discussion
Endometrial stromal sarcoma (ESS): What treatment did you get?
Gynecologic Cancers | Last Active: Sep 10 9:55pm | Replies (68)Comment receiving replies
Thank you so much..so far nothing yet, still waiting on appt for CT scan, can't do hysterectomy until that is clear.. did you have ct scans to check for any spread, also did you have abdominal hysterectomy ? Not sure where you live but did you go to oncologist specializing in sarcoma?
Replies to "Thank you so much..so far nothing yet, still waiting on appt for CT scan, can't do..."
Connect
Hello @nzq21p —
You are asking some great questions. It is always good to be informed so you can advocate for yourself.
A chest/abdomen/pelvis CT scan was done a few days before my surgery to look for spread (none seen). I had a robotic-assisted (DaVinci) hysterectomy, with all the incisions made in my abdomen.
The clinic I go to is not an official sarcoma center (as defined by the Sarcoma Alliance), but my gyn oncologist is knowledgeable about sarcoma. Everything happened so quickly for me that I didn’t even know to ask the question of her before my surgery. However, I had a lot of trust in the referral my regular gyn made for me to this surgeon.
That said, after my surgery I did informational consultations at two sarcoma centers (one was the Mayo) to learn more about sarcoma and specifically ESS HG. It was helpful, I’m glad I did it.