Thank you Reminder to PMR group

I’m also grateful for all the comments and support I have received on this forum! It is nice to know you are not alone on your sometimes painful health journey.
Special thanks and acknowledgement to Mayo Clinic Mentors DadCue and Tuckerp - so knowledgeable and compassionate ❤️- you guys are great!

@joycj, As a fellow patient whose PMR is in remission, I know your husband is blessed to have his better half advocating and helping him through his PMR journey. So a big thank you for being his advocate and helping him find the support! I have one of those super helpers myself only she doesn't do computers 🙃

Yes thank you all for this forum. I’d be interested to know the origins of PMR in other patients’ experience. Mine seemed to originate with anxiety over my husband’s Carcinoid/ NET cancer. I didn’t feel overt anxiety but my body said otherwise.
At least that’s my conclusion, I may be wrong.

Just want to add to the chorus of thank you's! This group is a life-saver. I also appreciate Mayo's involvement and the moderation of the forum / sorting of responses. Excellent, excellent resource.

This was a wonderful forum that got me through a difficult time

I especially appreciate all the people who post their experiences with PCP, Rheumatologists, and Endocrinologists. The broad overview is so helpful.

@johnbishop
And thank you John for your kind words that have encouraged and helped since I first joined almost a year ago! It took me almost six months of reading everyone’s questions and experiences until I got the courage to speak up ! Now you can’t shut me up—😂😂😂
Thanks again, John ❤️

I've been on this group 2 1/2 years and it has been so helpful. At the start I wanted to know basics, like how often people were seeing their rheumatologist, what dose of prednisone they were on, how fast they were tapering and what lab tests were being done. I was reassured that I was getting standard care. Then I wanted to know more about PMR and followed a lot of links to good information. I learned about Kevzara and how to get it paid for here. But maybe best of all is the opportunity to help someone else by passing on experiences and information. It's very healing when someone responds that a comment has helped them. Maybe they're just being "midwest nice" but it doesn't really matter!

This forum is the very best. Great ideas, great place to learn and the best of all it makes you realize you are not alone. Could not ask for more from a group of total strangers. Thank you Mayo Clinic. A special thanks to the Volunteer Mentors who help fill in blanks and are always there with encouragement - what fantastic service you provide to this community.

I found out I had PMR this year. I was pushing my body to its limits with a physical challenge and each day got slower, this is strange I thought. The day I could not even get out of bed, dress myself or sit on toilet I went to Dr. But I believe it was around years ago. On a half marathon row challenge 2 years ago I had to stop because of pain across left shoulder. I had problems with left knee and my walk was not good. Regular injections in knee meant I could keep going. So the last two years I had good days and lots of bad days without knowing why. But I do now. Pain free now apart from left shoulder on waking and that goes away after exercise. So for me the excuse PMR was looking for was pushing myself so far my immune system was in trouble. Certainly not diet as I have always eaten healthy and 100% plant based for a year. Exercising a lot now with no problems but any stress or anxiety and my body lets me know. Yesterday I knew all was not well, very tired and a weird feeling I had never experienced before and it is hard to describe. It was very hot and humid so I was in bed by 4pm and knew I had done the right thing.