Living with Neuropathy - Welcome to the group

I have had amazing luck with the shoe brand Vionic
I have sandals, sneakers, and walking sneakers
It is all I wear now!

I think that if they fit, the Mephistos are worth every penny even if not on sale. I bought my first pair before 2000 and wore them almost daily for years. They never wore out, but my feet changed as neuropathy set in and my priority in shoe style had to change with it. Mephistos have always been top of the line ~ I assume they still are. But now I have to wear a very supportive, inflexible type of shoe that I find at stores that specialize in athletic/running shoes. Presently I have Brooks and Saucony. I'm so grateful for the great choice of footwear that we have. 😃

I’ve had great luck with Merrell Jungle Mocs slip-ons and slides for the arch support and ON Cloud 5 sneakers for the cushioning. I can walk and travel all day in either shoe and they are easy to slip off when you need to put your feet up.

Brooks and Saucony seem to be the closest solution for me as well. I'm hoping that once I get my custom insoles that issue will be resolved!

There are quite a few other discussions if you want to share what shoes work best for your neuropathy. Here's a link to other discussions - https://connect.mayoclinic.org/search/discussions/?search=shoes%20for%20neuropathy

John, I have tried to post a new discussion and can not get it to post. It is quite frustrating. I would like to let others know about update to Winsantor clinical trials. They are getting ready to start phase 3 hopefully soon. http://winsantor.com/peripheral-neuropathy-and-our-drug/

Hi @bb0753, I think your discussion is under review since it appears to be against Connect's guidelines due to the link to the funding for the phase 3 clinical trial for the Winsantor drug which is not permitted. From the guidelines number 5: https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

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Postings that promote products, coaching or events (videos, webinars, etc.) may be removed upon review. (See Guideline 1).
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I think it's OK to let folks know about the status of the Winsantor drug and link to their site but I don't think it's OK to ask members to donate to a fund for the clinical trial. They can read that on the site's updates pages. Also, there is already another discussion for folks to follow the status of the new drug.
-- Is there any update on Winsantor drug?: https://connect.mayoclinic.org/discussion/is-there-any-update-on-winsantor-drug/

Ok that's understandable. Thanks for explaining.

I am new to the group. I'm a 74 year old woman and have had undiagnosed numbness in my feet and ankles for several years. About nine months ago, I began having difficulty walking, but I do not have associated pain. After MRI's, numerous blood tests, and nerve testing; I was diagnosed with neuropathy. Neurologist said many people have neuropathy for unknown reasons. I have had Hashimoto's thyroid disease for 10 years, but am NOT diabetic. My Endrocinologist mentioned the RX drug Metanx and suggested I think about trying the supplements L-Methylfolate and B12. I have done some research and and have stared a low dose of the supplements which I will increase slowly if no side effects. Anyone else taking L-Methylfolate?

Welcome @bethiemae, Methylfolate is one of the supplements I take for my neuropathy (numbness only, no pain). I also have idiopathic small fiber neuropathy and have had it for well over 30 years but only bothered getting a diagnosis in 2016 because it seemed to be progressing up my legs. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.

There are a couple of websites you might find helpful for learning more about neuropathy.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

Have you discussed your difficulty walking with your doctor to see if physical therapy might be helpful?